Patient Mentor Profile

Doug Taylor

Doug

Diagnosed in 2003

"I lead a PH support group and edit a newsletter for the PH community in South Carolina. I am an architect specializing in historic preservation but went on disability several years ago. I now volunteer with the State Historic Preservation Office."

About Doug:

  • Born in 1957
  • Lives in South Carolina
  • Type of PH: Idiopathic
  • Languages: English

Doug feels comfortable discussing his experiences with:

  • infused medication
  • inhaled medication
  • oral medication
  • supplementary oxygen
  • cardiac or pulmonary rehabilitation
  • depression and mental health issues
  • traveling with PH
  • communicating with medical personnel
  • legislative advocacy
  • local support groups
  • online communities (PHA email groups, message boards, chats)

Contact Doug: DougT@PHAPHriends.org

 
Disclaimer: PHA PHriends are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.