Patient Mentor Profile

  Sally Maddox

Sally

Diagnosed in 1990

"I am a full-time teacher and I am very involved with PHA. I am married to an army reservist and I am step-mom to a teenager. In my free time, I like to go to the beach or mountains and I am a huge Jimmy Buffett fan."

About Sally:

  • Born in 1969
  • Lives in Georgia
  • Type of PH: Idiopathic
  • Languages: English

Sally feels comfortable discussing her experiences with:

  • oral medication
  • IV medication
  • working with PH
  • traveling with PH
  • communicating with school personnel about PH
  • organizing medical records
  • local support groups
  • online communities (PHA email groups, message boards, chats)

Contact Sally:

Fill out my online form.
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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.