Parent Caregiver Mentor Profile

Bill O'Donnell


PH Caregiver since 2001

"I am the father of a teenage girl with PH. She was diagnosed with PH at age 6. I run a small support group for parents and children with PH."

About Bill:

  • Born in 1962
  • Lives in Massachusetts
  • Languages: English

About Bill’s Loved One:

  • Patient’s year of birth: 1995
  • Type of PH: Idiopathic

Bill feels comfortable discussing his experiences with:

  • infused medication
  • oral medication
  • supplementary oxygen
  • traveling with PH
  • communicating with school personnel about PH
  • communicating with children about PH
  • local support groups
  • online communities (PHA email groups, message boards, chats)
  • parenting a child with PH

Contact Bill:

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Disclaimer: PHA PHriends are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.