Photos
Here are some photos of our meetings where we are enjoying time with others PHers and caregivers.

Contact support group leader, Melissa Keltgen, if you would like to submit a photo of you and your loved ones on this page.
slideshow
     
Our First Meeting in July 2008

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.