September 15, 2010


PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post

On the Ramp to Awareness Month

This year's Awareness Month theme will be Climbing Toward a Cure... in recognition of the focus brought to PH awareness by Drs. Benza and Frantz and PA Jessica Lazar's Kilimanjaro climb and the related Unity Walks in communities throughout the U.S. » Read more

What's In This Issue

» Spotlight On... PH Patient on
Today Show

» Get Smart
» Living Better with PH
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» Also of Interest
» PH News Headlines

Spotlight On...

Christie with friends and family

Christie Breault Shares Her Story on the Today Show

During PH Awareness Month this November, why not raise PH awareness by taking a cue from Christie and our PHAware Campaigners? Share your story with the media — like Christie, you might be surprised where a simple phone call or email can lead you!  » Read more

Get Smart
    People having a meeting

Working with PH: Tactics for Managing a Job and PH

Thurs., Sept. 23, 7 p.m. ET, Webinar
Does a PH diagnosis mean it’s time to throw in the time clock? Working patients will share their tactics for managing a job and their PH in this live e-learning event. » Register now
    bottle of pills

Learn the Side Effects of PH Medications

Tues., Sept. 28, 2 p.m. ET, Webinar
In this live webinar, Dr. Karen Fagan will explore the side effects that may arise as a result of PH treatments. » Register now

PHA on the Road

PHA on the Road Online Registration Closing Soon

PHA on the Road is only a few weeks away, but there is still time to register! Online registration will close on September 17 for Baltimore/Washington, D.C., and September 24 for Dallas, Texas. » Register now

    PHA Classroom

Familial/Genetic PH Recording Available in PHA Classroom

“Familial/Genetic PH,” the next available recording from PHA’s 9th International PH Conference this past June, is now available in the PHA Classroom. Check back often as additional Conference sessions are posted in the coming weeks. » View recording

Living Better with PH

PH Plus lanyard

PH Plus… Sickle Cell Disease

Sickle cell disease patients, visit PHA’s website to download educational resources for you and your medical team. Then sign up for PH Plus, PHA’s virtual support group for patients with associated diseases. Patients | Medical Professionals | Join PH Plus

PH Community Scoop

Lil logo

The Long Battle for Nicky: Lil Long Swims the Mighty Mississippi

After months of making waves in the media, PH patient Lil Battle Long literally combated waves during her swim across the Mississippi River this past weekend in memory of her friend Nicky and to raise PH awareness. Find out how it went! | Read Rino's blog post, "Out of Hope... Joy"


Support Groups: Sharing and so much more!

PHA support groups offer a variety of speakers and topics. For instance, in Wisconsin, the Fox River Valley Support Group recently hosted the founder of the national Caring Voice Coalition, an organization offering financial assistance and patient support. » Learn more about support groups


Raye Bohn Receives First 2010 Awareness Month Proclamation

Make Your Proclamation Request Today! Connecticut Governor Jodi Rell has already proclaimed November Pulmonary Hypertension Awareness Month. Why? Because PH patient Raye Bohn asked her to. » Read more


PHA Europe’s Summer Newsletter Now Available

PHA Europe has just published the summer issue of its newsletter, Mariposa. Take a look to learn more about the global community’s fight against PH. » Read Mariposa

From the PHA News Desk

Need to Connect with Another Patient Right Now?

Call PHA’s Patient-to-Patient Support Line at 800-748-7274. This is a new name for one of our very first patient services. Formerly known as the “Helpline,” we’ve renamed it to highlight one of the biggest benefits of this service: immediate connection with another patient. » Learn more

online messenger

Put Your 500 Facebook Friends to Work!

Sign up for PHA’s new Online Messengers campaign to spread the word about PH through Facebook and Twitter! Online Messengers will receive a weekly email from PHA with stories and stats to personalize and share with online friends. » Join now (requires a free Google account)

Medical Community Bulletin

PAH Pulmonary Arterial Hypertension

Upcoming Educational Events for Medical Professionals

Stay up to date on the latest educational events provided through PHA’s 30-City Program, On Demand Program, Preceptorship Program and Building Medical Education in PH. » Find events in your area in the PHA Online University calendar

Also of Interest

Scleroderma Foundation

Participate in National Congressional Call-in Day on September 15

Help find a cure for scleroderma. PH is a common complication in scleroderma patients. On September 15, contact your Members of Congress and encourage them to support the Scleroderma Research and Awareness Act. » Take action

PH News Headlines

» Grant Sparks Hope for Incurable Disease

» Donate for Great Charity Concert, The Duchess, York, September 5

» More News

Connect with PHA

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Upcoming Events

Sept. 17, 2010
New England PH Forum
Portland, Maine

Sept. 18, 2010
New England Swinging for a Cure Golf Tournament
Scarborough, Maine

Sept. 18, 2010
4th Annual Let’s Walk and Roll
Akron, Ohio

» Go to the Events Calendar

Video Journeys

Everyone has a story

Watch PH patient Christie Breault on the “Everyone Has a Story” segment of the Today Show.

Quick Poll

More than 13,000 PHers worldwide have Puckered Up 4 PH. Have you lent your lips to save lives?

» Take our Quick Poll!

Lend your lips to save lives. Contact

Need more information? Contact
Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.