September 28, 2010

       
PHA News
Latest Blog Post


Man typing on laptop computer

PHA Mentors Send Emails from the Heart

Some say letter writing is a lost art. Tell that to the 26 patients and caregivers who recently signed up to spend hours at their computers each week, emailing hope and encouragement to people living with PH. » Read more

What's In This Issue


» Spotlight On... PH Patient on Local TV Show
» Get Smart
» Website Discoveries by Kathryn Frix
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» PH News Headlines

Spotlight On...


Barbara Thompson

Patient Makes Second Appearance on Local TV Show

PH patient Barbara Thompson appeared on the Loretta McNary Show, a local Memphis TV show, for the second time in two years. In addition to speaking out about pulmonary hypertension, Barbara urged audience members to Pucker up for PH! » Read more

Get Smart


PHA on the Road

PHA on the Road: You can still register for Dallas

There is still time to register for the Dallas PHA on the Road forum (October 2). Pre-registration for the forum is available by calling 301-565-3004 x764. On-site registration may be available, but don’t wait to register! » Register now

    2010: Climbing Toward a Cure

Climbing Toward a Cure: Getting Involved During Awareness Month

Wed., Oct. 6, 2:30 p.m. ET
PH Awareness Month this November is our chance to show the world what a community like ours can do when we’re committed to finding a cure. Find out how you can get involved. » Register now
Posted:
» Watch Working with PH webinar

    PHA Classroom

Blood Disorders and PAH Recording Available in PHA Classroom

The next recording from PHA’s 9th International PH Conference, “Blood Disorders and PAH: Sickle Cells, Spleens and Platelets,” is now available in the PHA Classroom. Additional Conference sessions will be available in the coming weeks. » View Recording

Website Discoveries by Kathryn Frix


two people hugging

Things I Found: The PH Community

This week I found something I actually found more than 10 years ago. My cousin and dear friend had just been diagnosed with PH. He had not even begun his Flolan treatment yet when I found the PH email list (maybe 75 people then) on the PHA website. » Read more

PH Community Scoop


balloon release at PHA special event

Thank You, September Special Event Organizers

Our September event organizers proved that when it comes to hosting a special event, the sky’s the limit! From the mile-high city to the heart of the Mississippi Delta, PHA’s Special Events fundraisers covered all the bases this past month. » Learn more

From the PHA News Desk
    circle of friends

Raise Awareness and Funds to Fight PH

PHA offers three fun, easy fundraising programs so you can help us raise awareness and funds for PH at a celebration, at work, and online. Now is the perfect time to support a cause that means so much to you. Contact Jennifer at Jennifer@PHAssociation.org or learn more online.



exclamation point

PHA Website Maintenance Outage Oct. 5

Notice: The PHA website will be down for maintenance for approximately 1 – 1½ hours at some point between 8 a.m. – 1 p.m. ET on October 5. The 1 p.m. online support group chat for that day has been cancelled. If you have any questions or concerns, please contact Web@PHAssociation.org

Medical Community Bulletin


Speaker giving a presentation

Building Medical Education Event in N.C.

The 2nd annual UNC-Duke Research Triangle Pulmonary Hypertension Symposium will take place on Friday, October 22, in Chapel Hill, N.C. The symposium aims to educate healthcare providers on the appropriate diagnosis and treatment of PAH, focusing on special populations of PAH patients. » Learn more

PH News Headlines


» Pulmonary Vascular and Right Ventricular Dysfunction in Adult Critical Care: Current and Emerging Options for Management: a Systematic Literature Review

»UCSD Receives $10 Million NIH Grant to Lead Hypoxia Tolerance Research Study

» More News

Connect with PHA

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Upcoming Events

Oct. 2, 2010
PHA on the Road: PH Patients and Families Education Forum
Dallas, Texas

Oct. 2, 2010
6th Annual New York Fun Walk for Pulmonary Hypertension
East Meadow, N.Y.

Oct. 2, 2010
7th Annual GA Fun Walk for a Cure
Marietta, Ga.

» Go to the Events Calendar

Video

PHA and Doug Taylor Present: Awareness Month Proclamations in Six Easy Steps

» Watch now
PH patient and support group leader Doug Taylor demonstrates the steps involved in getting an Awareness Month Proclamation from your city or state.

Quick Poll Answer

More than 13,000 PHers worldwide have Puckered Up 4 PH. Have you lent your lips to save lives?

Yes! I puckered up for PH. - 50%
Not yet, but I am planning to. - 50%
No, I am not interested in the campaign. - 0%

Look for a new question in the next issue!

Online Support Group Chats scheduled daily. Join the conversation!
Help another PHer by submitting your successful insurance letters


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Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.