October 13, 2010


PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post

Dr. Fishman

Alfred Fishman, MD: An Appreciation

On Friday morning, as I was getting off a plane in Raleigh-Durham, I received a note from Carol Vreim that Dr. Al Fishman had died in Philadelphia at 92 years of age. » Read more

What's In This Issue

» Spotlight On... Special Events Walks
» Get Smart
» Living Better with PH

» From the PHA News Desk
» Medical Community Bulletin
» Also of Interest
» PH News Headlines

Spotlight On...

Team Sullivan

Head Start on Awareness Month with October Fun Walks

PH patients Sally Maddox and Joanne Sperando-Schmidt recently held their respective long-standing events, the 7th Annual Georgia Fun Walk and 6th Annual New York Fun Walk — helping to set the tempo for November’s Awareness Month fun walks! » Read more

Get Smart

PHA on the Road

PHA on the Road – A Success in 2010

PHA on the Road was back this fall visiting the Baltimore/Washington, D.C., area (Sept. 25) and Dallas, Texas (Oct. 2). Thanks to all who attended for making them a great success. PHA will be back “on the road” in spring 2011!

    PHA Classroom

Palliative Care Recording Available in PHA Classroom 

The next recording from PHA’s 9th International PH Conference, “Palliative Care: What Is It and How Can It Help?” is now available in the PHA Classroom. Check back for more sessions coming soon! » View recording

Living Better with PH

PH Plus

PH Plus… Liver Disease

Liver disease patients, visit PHA’s website to download educational resources for you and your medical team. Then, sign up for PH Plus, PHA’s virtual support group for patients with associated diseases. Patients | Medical Professionals | Join PH Plus

From the PHA News Desk
    Social Security Administration logo

New Social Security Disability Resource Available

Find answers to common questions about Social Security Disability (SSD) in the new comprehensive section of our Online Insurance Guide. You can also find a starter kit for applying, information on making an appeal, and a recap of PHA’s ongoing work with the Social Security Administration. » Visit the SSD section

bear and backpack

Get Funding for Your Innovative Idea!

Do you have a great idea for advancing the PH cause, but lack the funds to implement it? PHA has a solution: the Tom Lantos Innovation in Community Service award» Apply now

    Capitol steps

Invite Your Members of Congress to Lunch

16-year-old girls shouldn’t have to worry about leaving a legacy. Rep. Brady and other co-sponsors of the Tom Lantos PH Research and Education Act understand PH. Do your senators and representatives? Invite them to PHA’s free Congressional Luncheon on Wednesday, Nov. 17. Send an invitation | Learn more and RSVP

Medical Community Bulletin

Building Medical Education in PH

Building Medical Education Event in Ohio

The 7th annual Pulmonary Hypertension Symposium will take place on Friday, Nov. 19, in Cleveland, Ohio. The symposium will provide an overview of the practical issues in the diagnosis, evaluation and management of patients with PH. » Learn more

    a hand picking up beakers

Research Award for Young Investigators

Actelion just released their invitation for young investigators to apply for the 2011 ENTELLIGENCE Young Investigators Award. The program provides funding to promising young investigators to encourage and promote quality medical care and enhance patients’ lives through research in pulmonary hypertension. » Learn more | Learn about other research opportunities

Also of Interest logo

Healthcare Reform Reaches Six Months, New Changes Enacted

As of Sept. 23, new healthcare reform benefits began, including the exclusion of lifetime limits, the phase-out of annual limits and the extension of coverage for young adults until the age of 26. Read article | Learn more about the Affordable Care Act

    Carol from Texas

Government Offers Extra Help for Medicare Part D Beneficiaries

As part of the effort to phase out the Medicare Part D coverage gap, starting in 2011, beneficiaries will receive a 50% discount on covered brand-name drugs needed while in the donut hole, and will begin to pay less for generic drugs. Learn more about the discount | Learn more about Medicare Part D

PH News Headlines

» PH Patient Praises Work of University of Maryland Medical Center’s Doctors

» Updated U.S. Product Labeling for Veletri (Epoprostenol for Injection)

» NIH Awards Grant for Pulmonary Arterial Hypertension Research

» Brave Oliver Battles Rare Condition - Family Launches Campaign

» More News

Connect with PHA

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Upcoming Events

Oct. 23, 2010
2nd Annual Through Tears Comes Laughter: An Afternoon of Comedy to Support PHA
Cornelius, N.C.

Oct. 30, 2010
Serendipity Silent Auction to Benefit PHA
Easley, S.C.

Nov. 5, 2010
8th Annual Fundraising Luncheon
Spokane, Wash.

» Go to the Events Calendar

Video Journeys

Becca Atherton journey at Conference

» Watch video
Watch PH Patient Becca Atherton’s 2010 PHA Conference Video Journey and more than 100 other videos on PHA’s YouTube page.

Quick Poll

What are you doing for PH Awareness Month this November?

» Take our Quick Poll!

Leave a Legacy of Hope. Learn about PHA's Legacy of Hope Society
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.