October 27, 2010

 

       
PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post


Raising awareness at the Capitol

Awareness Month is almost here…

PH Awareness Month is a special time to focus our communities on understanding PH. It begins next week... and a lot is already happening. » Read more

What's In This Issue


» Spotlight On...  PHA's
Congressional Luncheon

» Get Smart
» Website Discoveries
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» PH News Headlines

Spotlight On...


Congressional Luncheon

RSVP for PHA’s Congressional Luncheon by Nov. 10!

PHA’s Congressional Luncheon on Nov. 17 is just around the corner. RSVP by Nov. 10 for this important, free event in the Library of Congress. Spread the word and — no matter where you live — invite your Members of Congress.

Get Smart


depressed woman

Learn to Keep the PH Blues Away

Thursday, Nov. 11, 2:00 p.m. ET
For some PH patients, the experience of living with PH is akin to riding a roller coaster. This webinar with Dr. Stephen Mathai from Johns Hopkins University will focus on strategies to preserve physical and emotional well-being in the context of PH. » Register now

    Tom Lantos

Get Your Innovative Idea Funded

Thursday, Nov. 18, 3:00 p.m. ET
Do you have a great idea for advancing the PH cause, but lack the funds to implement it? PHA has a solution — the Tom Lantos Innovation in Community Service Awards program. Applying is easy, and PHA’s Senior Vice President will show you how during this webinar. » Register Now



PHA on the Road

PHA on the Road – Photos and Program Books Now Available

PHA on the Road has parked online with a photo gallery featuring select pictures from the Baltimore/Washington, D.C., and Dallas, Texas, forums. Program books are also available from both forums, complete with session handouts! » Experience PHA on the Road



PHA Classroom

"Stem Cells and PAH" Recording Available in PHA Classroom 

Another recording from PHA’s 9th International PH Conference, “Stem Cells and PAH: Cause or Curse?” is now available in the PHA Classroom. More sessions coming in November! » View recording

Website Discoveries


emergency responders

Things I Found by Kathryn Frix: Tips for Healthy Eating

I got derailed this week. I had a totally different topic in mind, but kept going off track, just as though it was meant to be. Tricks and treats and holiday foods are like that: pushy and appealing. » Read more 

PH Community Scoop


Balloon release at a PHA Special Event

Thank You, October Event Organizers! 

With fun walks leading the charge, October’s Special Events emphasized the “fun” in fundraising. To all the organizers, committee members, support group members and participants who contributed to making this month one to remember, we thank you. » Read more 

From the PHA News Desk
    blogger at computer

PH Blogging Day: Nov. 16 and Beyond

PH Blogging Day is November 16 and you don’t need a blog to participate. Consider Facebook, Twitter, or any way you want to share your story. Feeling ambitious? Some PHers post about PH every day during November. » Learn more and RSVP



community involvement

Awareness Month in Your Community

Educating your neighbors about PH can be as easy as setting up a table or presenting before a local organization. Some PHers connect with local schools to educate students about PH. » Learn more



Learning about SSD

Answer Five Questions, Advance Our Social Security Administration (SSA) Initiative

Have you applied or are you in the process of applying for Social Security Disability (SSD)? Take a short survey to help us identify needs and advocate for PH patients applying for SSD. Learn more about SSD | Learn more about PHA’s work with SSA

Medical Community Bulletin


Deb McCollister

Save the Date for PH Resource Network Symposium 2011!

The 2011 PH Resource Network Symposium Inspiring Hope: New Directions in PAH will take place Sept. 22-24 in Arlington, Va. Mark your calendars now to attend this educational and networking event for PH-treating allied health professionals. » Learn more

PH News Headlines


» Quebec City Researchers Pave the Way for Novel Treatment of Pulmonary Hypertension

» UK PH Patient Beat the Odds to Succeed in Business With "Joey Pouch"

» Community of Angels Meets to Defeat Pulmonary Hypertension

» Opera Singer Thrives After Double Lung Transplant

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Upcoming Events

Oct. 30, 2010
Serendipity Silent Auction to Benefit PHA
Easley, S.C.

Nov. 5, 2010
8th Annual Fundraising Luncheon
Spokane, Wash.

Nov. 6, 2010
The Inaugural J. Patrick Garcia Breathe Easy
Albuquerque, N.M.


» Go to the Events Calendar

Conference Video

9th International PH Conference and Scientific Sessions video

» Watch video 
PH Patient Kirsten Larson shares her PH Journey at PHA's 9th International PH Conference and Scientific Sessions 2010 and talks about the importance of awareness raising.

Quick Poll Results from Last Week

What are you doing for PH Awareness Month this November?

20% - Fundraising for a cure
10% - Legislative advocacy
10% - Sharing my story with the media
10% - Participating in PH Blogging Day on Nov. 16
50% - A little of everything! 

Look for a new question in the next issue!

Help raise PH awareness in this stylish new PHA T-shirt
Join PHA's Online Messengers and raise awareness online!


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.