November 10, 2010



PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post

Mountain climbing flame guy

Kicking off Awareness Month in Style...

Here’s a guest blog from PHA staffer Katie Kroner. Awareness Month is an organization-wide event at PHA, but if you have questions about how to get involved, Katie and her team in the Advocacy and Awareness Department are a great place to start... » Read more

What's In This Issue

» Spotlight On... PH Blogging
Day Nov. 16

» Get Smart
» Living Better with PH
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» Also of Interest
» PH News Headlines

Spotlight On...

Online messenger at a laptop

PH Blogging Day Nov. 16

Worldwide Awareness — On the Web!
PH “Blogging” Day is Nov. 16 and all you need is Facebook, email, Twitter or a blog. Share your PH story. Educate everyone you know, and people you don’t, about PH. » Learn more and RSVP

Get Smart

PHA Classroom logo

Five New Sessions Added to PHA Classroom

New recorded sessions from our 9th International PH Conference are now available. Topics include: Understanding PH, New Medical Therapies for Children, Liver Disease and PH and more. Additional sessions will be posted in the coming weeks, so check back often. » View sessions

    Depressed woman

Learn to Keep the PH Blues Away

Thursday, Nov. 11, 2:00 p.m. ET
For some PH patients, the experience of living with PH is akin to riding a roller coaster. This webinar with Dr. Stephen Mathai from Johns Hopkins University will focus on strategies to preserve physical and emotional well-being in the context of PH. » Register now

    A group of teenagers

Transitioning Your Child from Pediatric to Adult Care

Thursday, Nov. 18, 8:30 p.m. ET
A phone call for parents of children ages 9 and up with PH
Michelle Ogawa, PNP, will discuss the transition from pediatric to adult PH treatment. » Learn more

    Tom Lantos

Get Your Innovative Idea Funded

Thursday, Nov. 18, 3:00 p.m. ET
Do you have a great idea for advancing the PH cause, but lack the funds to implement it? PHA has a solution — the Tom Lantos Innovation in Community Service Awards program. Applying is easy, and PHA’s Senior Vice President will show you how during this webinar. » Register now

Living Better with PH

HHT conference logo

HHT Patients Find Education and Support in St. Louis

Patients with Hereditary Hemorrhagic Telangiectasia (HHT) congregated at the annual HHT Foundation conference in October. PH and HHT patient Chris Fini said the meeting gave her “hope for the future.” » Read more

PH Community Scoop

Holiday party

Local Support Groups Celebrate 2010

Many support groups are holding holiday parties — several sponsored by PHA’s Support Group Central Fund. Check your local Support Group page or contact Sophie at 240-485-0758 or for more information. Leaders, apply online for funding for a celebratory meeting.

Balloon release at a PHA Special Event

A Tribute to Event Organizer Linda Pall

After eight years of organizing an Annual Fundraising Luncheon, Inland Northwest PH Support Group Leader Linda Pall is passing on the torch. Look back at the event’s beginnings and find out what made this year’s Nov. 5 luncheon so special! » Read more

From the PHA News Desk
    Woman with her Member of Congress

Congressional Luncheon — Democracy at Work

Sen. Robert Casey's office called to say he will be sending someone to PHA’s Congressional Luncheon. If you are a member of the Pennsylvania PH community, there is no need to contact his office. However, if you live elsewhere, please do invite your Members of Congress!

Medical Community Bulletin

BME logo

Building Medical Education Event in New England

The 8th Annual Update in Pulmonary Hypertension will take place on Friday, Dec. 3, in Cambridge, Mass. The event will cover early detection and diagnosis, medical therapies and prognosis, and will also provide a framework for patient-centered outcomes. » Learn more

Also of Interest


PH Community Scores Legislative Victory!

President Barack Obama signs the Improving Access to Clinical Trials Act of 2009 into law. » Read more

    considering stem cell treatment?

Stem Cell Resources for Patients

Interested in learning the facts about stem cell therapy? The International Society for Stem Cell Research created a website with stem cell resources for patients. And also be sure to read PHA’s Stem Cell Statement and Fact Sheet.
PH News Headlines

» CHEST: Clinical Changes Signal Prognosis in PAH

» Pulmonary Hypertension Is Common in Patients with Chronic Kidney Disease

» Seven in 10 Canadians Unaware of Potentially Fatal Lung Disease

» Village Elementary Teacher Raises Awareness about Rare Disease

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Upcoming Events

Nov. 13, 2010
3rd Annual South Florida Fun Walk
Pompano Beach, Fla.

Nov. 13, 2010
The 4th Annual North Texas Fun Walk for a Cure
Grand Praire, Texas

Nov. 13, 2010
2nd Annual Pulmonary Pints: Pubcrawl for PH
Baltimore, Md.

» Go to the Events Calendar

Conference Video

9th International PH Conference and Scientific Sessions video

View the story that inspired our Awareness Month theme! From the Kilimanjaro journey of Drs. Benza and Frantz and Jessica Lazar, PA, to footage of the nationwide Unity Walks they inspired, you’ll see why this Awareness Month we’re Climbing Toward a Cure.

Quick Poll

I’m looking forward to Thanksgiving because…

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Members-Only Sale! PHA Logo Pin $3

Don't forget! Return PuckerUp entry forms by end of November

Need more information? Contact
Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.