Staying Active with PH
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voice with slides |
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Calm, Cool and Collected: Restorative Yoga for the PH Patient
1/22/13
Presenter:
-Rana Lee Adawi Awdish, MD, Henry Ford Health System |
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voice with slides |
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Life After Diagnosis: Staying Active with PH
2/16/12
Presenters:
-Abby Poms, RRT, Duke University Medical Center
-Hannah Lahmeyer
-Melanie Kozak
-Rebecca H. Crouch, PT, DPT, CCS, FAACVPR |
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voice and slides |
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Working With PH
9/23/10
Presenters:
-Sally Maddox
-Leslie Polss
-Joanne Sperando-Schmidt |
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video |
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Hop, Skip and Run: Exercising Your Way to a Healthier and Happier State
 6/26/10
Presenters:
-Roham Zamanian, MD, FCCP*, Stanford University, Chair
-Nicholas Hill, MD, Tufts Medical Center
-Rajeev Saggar, MD, David Geffen School of Medicine at UCLA
-Barbara Smithson, RN, MSN, Rhode Island Hospital |
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audio |
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PAH Traveling Tips
6/25/10
Presenters:
-Ann Arnott
-Evelyn Crespo
-Ellen Harris
-Angel Gorman, Lincare |
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audio |
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Young Adults with PH: 18+
6/25/10
Presenters:
-Emily Mitchell
-Lindsay Nicol
-Carson Smith
-Sean Wyman |
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voice and slides |
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Exercise and PH: The Risks and the Benefits
4/8/10
Presenter:
-Barbara Smithson, RN, MSN, Rhode Island Hospital |
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voice and slides |
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Summer "PHun" Tips
6/9/09
Presenter:
-Mary Bartlett, MS, RN, CS, FNP, Winthrop Pulmonary Hypertension Center, Support Group Leader |
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Nutrition and PH
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voice and slides |
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Can What You Eat Affect Your Disease State?
4/19/13
Presenter:
Anna R. Hemnes, MD, Vanderbilt University Medical Center |
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voice and slides |
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Keys to Healthy Food Shopping
12/14/12
Presenter:
-Misty Lewis, CHHC, AADP, Naturally Sweet Nutrition (www.naturallysweetnutrition.com)
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video with slides |
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Eating Better
 6/18/11
Presenter:
-Kelly Scheller, RD, LD, University of Minnesota Medical Center, Fairview |
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video and slides |
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Defensive Dining: Eating to Maintain Health and Avoid Complications
6/27/10
Presenters:
-Glenna Traiger, RN, MSN, University of California Los Angeles, Chair
-Kari Ehringer, PharmD, Accredo
-Lisa Kinder, RD, CNSD, Critical Care Systems |
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voice and slides |
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Healthy Eating: Tips for the Holiday Season
11/23/09
Presenter:
-Myung H. Park, MD, FACC, University of Maryland School of Medicine |
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chat transcript |
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Exercise and Nutrition: Ways to a Healthier PH Lifestyle
8/12/08
Presenters:
-Robyn Duarte, PHA Medical Services Associate, Moderator
-Michael Mathier, MD, University of Pittsburgh
-Sidnie Hess, RRT AE-C, Inova Fairfax Hospital |
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Medication & Healthcare Management
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video |
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Alternative Medicine
 6/24/12
Presenters:
-Hector Cajigas, MD, Henry Ford Hospital, Detroit, Mich. (Chair)
-Rana Awdish, MD, Henry Ford Hospital, Detroit, Mich.
-Deb McCollister, RN, BSN, University of Colorado Denver, Aurora, Colo. |
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video |
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Emergency Situations and Primary Care Issues
6/23/12
Presenters:
-Michael McGoon, MD, Mayo Clinic, Rochester, Minn. (Chair)
-Liz Brigham, PH patient, Waynesville, N.C.
-Louise Durst, RN, Mayo Clinic, Rochester, Minn.
-Eric Fenstad, MD, Mayo Clinic, Rochester, Minn.
-Crystal Weber, RN, Duke University Medical Center, Durham, N.C. |
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voice and slides |
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The Empowered Patient: Nurturing Partnerships with your Medical Professionals to Get the Best Care Possible
1/26/11
Presenter:
-Deborah Levine, MD, University of Texas Health Science Center at San Antonio |
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voice and slides |
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Side Effects of PH Medications
9/28/10
Presenter:
-Karen Fagan, MD, University of South Alabama |
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video |
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Emergency Situations and Primary Care Issues
6/27/10
Presenters:
-Michael McGoon, MD, Mayo Clinic Rochester, Chair
-Louise Durst, RN, Mayo Clinic Rochester
-Namita Sood, MD, FCCP, The Ohio State University
-James White, MD, PhD, University of Rochester |
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video |
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Alternative Medicine
6/27/10
Presenters:
-Myung Park, MD, University of Maryland School of Medicine, Chair
-Joshua Breeding, PharmD., BCPS, University of Minnesota Medical Center
-Natalie Kitterman, RN, BSN, CCRP, Intermountain Medical Center
-Helena Purl, RN, BSN, CCRC, Baylor College of Medicine |
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audio |
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My Doctor Said I May Need a Lung Transplant
6/25/10
Presenters:
-Angie Eldam
-Karen Lindemann |
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video |
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Changing to Different PH Medications: Important Things to Know Before, During and After
6/26/10
Presenters:
-Victor Tapson, MD, Duke University Medical Center, Chair
-Murali Chakinala, MD, Washington University
-Kelly Chin, MD, UT Southwestern Medical Center
-Helena Purl, RN, BSN, CCRC, Baylor College of Medicine |
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audio |
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Taking an Active Role in Your Healthcare Decisions
6/25/10
Presenters:
-Barbara Gamer
-Charlotte McCabe
-Sean Warren
-Doug Taylor |
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chat transcript |
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Emergency 101: How to Prepare Yourself and Others for PH Emergencies
8/26/08
Presenters:
-Debbie Levine, MD, University of Texas Health Science Center
-Marilyn Schmidt, RN, ByanLGH Medical Center |
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Coping with PH & Maintaining Quality of Life
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voice with slides |
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Breathing Your Way to Calm
3/25/13
Presenter:
-Rana Lee Adawi Awdish, MD, Henry Ford Health System |
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voice with slides |
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Starting Out the New Year Right - Making a Commitment to You!
2/1/13
Presenter:
-Christine Archer-Chicko, MSN, CRNP |
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voice with slides |
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Understanding the Emotional Impacts of Transplant
5/30/12
Presenter:
-Allyson Rupp, LCSW, Vera M. Wall Center for Pulmonary Vascular Diseases Stanford Hospital and Clincis |
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voice with slides |
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Creativity and Healing Through Blogging
3/8/12
Presenters:
-Leigh McGowan
-Colleen Schnell |
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voice with slides |
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Maintaining Relationships with Friends and Family After Diagnosis
1/25/12
Presenter:
-Ginny Maril, MPsy, Texas Woman's University |
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voice and slides |
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Creative Expression for Wellbeing
10/12/11
Presenters:
-Janet Stone, PH Patient and Active Artist
-Megan Mallory, PHA's Associate Director of Publications |
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voice and slides |
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Telling Your Story: Explaining PH to Friends, Family and Coworkers
9/1/11
Presenters:
-Amanda Harvey-McKee
-Brit Riggins |
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voice and slides |
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Keeping the PH Blues Away
11/11/10
Presenter:
-Stephen Mathai, MD, MHS, Johns Hopkins University School of Medicine |
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video |
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Palliative Care: What Is It and How Can It Help?
6/27/10
Presenters:
-Keith Swetz, MD, Mayo Clinic, Rochester, Chair
-Paul Fairman, MD, Virginia Commonwealth University
-Janet Pinson, NP, Virginia Commonwealth University
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video |
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Ups and Downs of Living with PAH
6/26/10
Presenters:
-Ronald Oudiz, MD, Harbor-UCLA Medical Center, Chair
-Hubert Chen, MD, MPH, University of California San Francisco
-Deborah McCollister, RN, BSN, University of Colorado Denver
-Darren Taichman, MD, PhD, University of Pennsylvania |
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audio |
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Power of Choice: Living a Fulfilling Life with a Chronic Illness
6/25/10
Presenters:
-Hannah Lahmeyer
-Leslie Polss
-Teresa Wilson |
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audio |
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When People Just Don't Understand PH
6/25/10
Presenters:
-Amanda McKee
-Sheree Rickman
-Marcia Beverly |
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audio |
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Long-Term Survivors: 10+ Years
6/25/10
Presenters:
-Marilyn Clements
-Alex Flipse
-Cindy Link
-Jeannette Morrill |
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audio |
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Conserving Your Energy and Strength
6/25/10
Presenters:
-Mark Arellano, Chair
-April Scheppe
-Rita Orth, RN |
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audio |
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Spirituality and the Courage to Face a Serious Illness
6/25/10
Presenters:
-Dorothy Olson
-Rev. Steve White, PhD |
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video and slides |
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Words for Wellbeing
6/25/10
Presenters:
-Sylvia Earley, volunteer copy editor for Pathlight
-Megan Mallory, PHA Publications Manager
-Jeannette Morrill, author of "Living with Pulmonary Hypertension: 34 Years and Counting .. Healing the Mind and Body Through Faith"
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voice and slides |
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Lifestyle Modifications for Improved Quality of Life
1/27/10
Presenter:
-Janet Pinson, NP, Virginia Commonwealth University |
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