November 23, 2010 >> back to issue

Thank You, November Special Event Organizers!

Abby's Road PHun WalkAbby's Road PHun Walk With sixteen events in November, Awareness Month was a very busy time for PHA Special Events! We want to thank all of our exceptional organizers who helped make real our theme of Climbing Toward a Cure. Below are highlights from each event, showing just why every fundraiser is truly special:

2nd Annual Cure PH Casino Night in Memory of Wendy Bockhorst (Phoenix, Ariz.) – The Arizona PH community “gambled” the night away for a great cause and participants come from as far away as Las Vegas, Nev. The event grossed more than $20,000.

2nd Annual Pulmonary Pints: Pubcrawl for PH (Baltimore, Md.) – With 93 registrants, 2010’s pubcrawl almost quadrupled in size compared to last year’s inaugural event!

3rd Annual Baltimore PH Walk for HOPE (Baltimore, Md.) – Raising almost $15,000, this was the most successful Baltimore walk to date.

3rd Annual South Florida Fun Walk (Pompano Beach, Fla.) – With several first-time attendees and new PH patients participating in the walk, this year’s event truly provided hope and support for the community.

4th Annual North Texas Fun Walk for a Cure (Grand Prairie, Texas) – Nearly 100 people braved the surprisingly chilly Texas weather to attend this year’s walk.

5th Annual PHenomenal Hope for a Cure (Omaha, Neb.) – Sally Ganem, Nebraska’s First Lady, was honorary chair of the event that had nearly 160 attendees.

8th Annual Inland NW Support Group Fundraising Luncheon (Spokane, Wash.) – This year’s silent auction portion of the luncheon had a festive twist with Thanksgiving-themed baskets for bid.

10th Annual Race Against PH (Stanford, Calif.) – In its 10th year, this is one of PHA’s longest-running fundraisers.

Abby’s Road PHun Walk (Albuquerque, N.M.) – This first-time event had a great turnout of approximately 90 walkers. The walk also honored a family who lost two daughters to PH and has a third daughter who had PH for five years and is now a nine-year double lung and heart transplant survivor.

Black Tie Dinner/Dance for PHA (Chicago, Ill.) – This annual fundraiser is hosted by a core group of friends and colleagues who choose a different non-profit beneficiary each year. A committee member’s connection to PH made it possible for the 2010 event to support PHA’s efforts.

Clips for a Cure (Spartanburg, S.C.) – This event is the second of TWO fundraisers that the Upstate SC PH Support Group organized going into PH Awareness Month. Ten percent of proceeds from their local hair salon benefitted PHA.

Cookin’ Up a Cure Tea Party (Waianae, Hawaii) – This casual tea party, organized by PH patient and Generation Hope member Dawn Apio-Manoa, is the first PHA fundraiser to take place in the state of Hawaii!

From Grapes to Wine: House Party for PH (Longmont, Colo.) – Part of PHA’s Cookin’ Up a Cure House parties series, this first-time house party and wine tasting honored pediatric PH patient Iain Hess and featured a sizable silent auction and raffle.

Inaugural J. Patrick Garcia Memorial Breathe Easy (Albuquerque, N.M.) – State Senator Jerry Ortiz y Pino presented a proclamation at the event declaring November Pulmonary Hypertension Awareness Month in New Mexico.

Thanksgiving Disco Fever Concert (Long Island, N.Y.) – A local radio station holds this fundraiser to benefit various organizations, and PHA was added to the beneficiary roster after a compelling phone call from the Rubio family. The Rubios lost their young daughter to the disease, and now the family has begun raising PH funds and awareness in the community.

Unmask PH: A Masquerade Ball (Wilkes Barre, Pa.) – PH patient Katie Tobias made her inaugural event a family affair. Her small town roots brought out more than 130 friends and family to this dinner/dance. Guests created homemade masks to play up the event’s theme!

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.