November 23, 2010 >> back to issue

Things I Found: Our Journeys

Kimberlee FordKimberlee shared her story through
Our Journeys

This is one installment of Things I Found on PHA’s Website that nearly did not get written. The reason is simple, and I’ll admit it; I could not stop reading what I found. Right now as I’m writing this, I want to get back there and keep on reading.

My inspiration this week was correspondence with new members of our online community. I welcome new members, and they respond with stories of diagnosis and other facets of dealing with PH in their own lives. Each one is a journey that is just beginning, and a story I can’t put down. I am constantly amazed by the strength and courage of this community.

As I read the emails, I was reminded that we each have a story. I remembered where to find many of them: Our Journeys. And this morning, I could not stop reading them.

I read about Kimberlee, a young woman of 31 who felt so weak at work she drove to her parents’ house, collapsed on their couch and was taken to the hospital by ambulance. She had recently been told it was asthma. It wasn’t.

And I read about how Sean and his mom taught the paramedics what to expect if a 911 call came from their home for Sean, and what they should know about Flolan. Sean’s mom said, “I was scared. Then we go forward.” In an update to Sean’s story I read that he is doing so well, his mom says he has a MAJOR life! That was so good to read.

Our Journeys are in categories of Patients’ stories, Patient stories as told by others, Caregiver stories and more. There is even a category for Medical Professional stories, and I think I’ll read about Dr. John Newman while I eat lunch today. Please consider writing your own story for Our Journeys, and if you already have a Journey story, please consider sending an update for your page.



Kathryn Frix

Kathryn Frix
Online Community Liaison

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