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2010 Conference Session Recordings

Get Involved: Fighting for the Cause

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>>More Get Involved recordings 

Congress Works for Me
  Congress Works for Me: Advocacy as a Means for Your Voice to Be Heard
-Raye Bohn
-Janet Cecil
-Diane Ramirez
Gavin Lindberg, PHA's Washington Representative
video and slides
  From Your Hometown to Capitol Hill: Become Your Own Advocate
-Gavin Lindberg, PHA's Washington Representative
-Charlotte McCabe, 435 Campaign Member
-Doug Taylor, 435 Campaign Member
-Elisabeth Williams, PHA Grassroots Campaigns Associate
PHA Classroom - 2010Jun25 - Conf - Creative Connections panelists
video and slides
  PHA 2.0: Using the Web to Fight Against PH
-Stuart Berwick, Facebook advocate
-Laura D'Anna, DrPH, MPA, Web of Friends fundraiser
-Diane Greenhalgh, PHA Director of Web Services
-Pam Pedersen, e-Advocate
Dr. Frantz, Dr. Benza, Jessica Lazar, PA, at the summit of Mt. Kilimanjaro Feb. 2010
video and slides
  Put the Special in Special Events

-Lauren Johnson, Painting a Stroke of PHenomenal Hope, Okla.
-Melissa Johnson, Painting a Stroke of PHenomenal Hope, Okla.
-Bonnie McGoon, Biennial Rochester PHA Gala, Minn.
-Jessica McKearin, PHA Special Events Manager
-Amanda McKee, St. Louis PHA Dinner and Wine-Tasting, Mo.
-Jack Stibbs, CurePH: The Woodlands Crawfish Festival, Texas

Media Matters! panelists
  Media Matters!
-Alicia House
-Pam Pedersen
-Elisabeth Williams, PHA Grassroots Campaigns Associate
Have an Innovative Idea? Learn How to Get it Funded
video and slides
  Have an Innovative Idea? Learn How to Get it Funded
-Adrienne Dern, PHA Senior Vice President
-Kathy Groebner, Bears with Back Packs

-Carol Lindstrom, The Angel Project





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United Therapeutics Corporation

This is a program of the PHA Medical Education Fund, made possible through educational grants from our supporters.


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View the Program Book

Check out the Conference Program Book for detailed session descriptions, speakers, room locations, exhibitor information, sponsors and more.

View Conference Program Book (PDF)

View the Handout Book

Continue your PH education with the Conference Handout Book for session handouts from the majority of the Skill Building Workshops, Patient/Family Led Sessions and Medically Led Sessions.

View Conference Handout Book (PDF)

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.