November 23, 2010

 

       
PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post


Considering stem cell treatment?

Stem Cell Treatments…

Sometimes there's science, sometimes there's guesswork, sometimes there's quackery... Several months ago, in an effort to help patient understanding and navigation of the very new and untested waters of stem cell therapy, PHA’s Scientific Leadership Council produced a statement and fact sheet on this subject. » Read more

What's In This Issue


» Spotlight On... Caregivers
» Get Smart
» Website Discoveries
» PH Community Scoop

» Medical Community Bulletin
» Also of Interest
» PH News Headlines

Spotlight On...


patient and caregiver

Give Thanks to Your Caregiver!

November is National Caregiver Awareness Month! PHA would like to honor the parents, families and friends who support PH patients. For a chance to honor your caregiver in Pathlight, email Caregiver@PHAssociation.org and tell us why you’re thankful for your loved one.

Get Smart


PHA Classroom

Six New Sessions Added to PHA Classroom

New recorded sessions from our 9th International PH Conference have been added to PHA Classroom. Topics include Basic Research in PH, Infused Prostacyclins, PAH Drug Development and more. Additional sessions will be posted in two weeks, so check back! » View sessions

    Sample Medicare card

Missed the Medicare Part D and Enrollment chat?

Read the transcript online and find answers to popular questions about Medicare Part D and Fall Open Enrollment. Lasting from Nov. 15 through Dec. 31 this year, Fall Open Enrollment is the time period for Medicare beneficiaries to review, change and choose coverage that best meets their needs.

Website Discoveries


photo of patient

Things I Found by Kathryn Frix: Our Journeys

This is one installment of Things I Found on PHA’s Website that nearly did not get written. The reason is simple, and I’ll admit it: I could not stop reading what I found. » Read more

PH Community Scoop


balloon release at PHA special event

Thank You, November Special Event Organizers

Sixteen fundraising events took place during Awareness Month this November – everything from a casino night to a masquerade ball, a fun walk to a house party. PHA extends a huge thank you to all the organizers! » Learn more about these events



J. Patrick Garcia & wife Carol

N.M. Family Hosts Inaugural Event in Memory of Loved One 

The Garcia family of Albuquerque, N.M., planned and hosted the J. Patrick Garcia Memorial Breathe Easy Walk/Run and Luncheon in just six weeks. Overcoming the obstacles of time and grief, the family persevered to host a truly memorable fundraiser. » Read the inspiring story 



heart and lungs

PH Featured on Connecticut Public Radio

PHA Board Member Steve White, PH physician Dr. Terence Trow, and PH patient Colleen Brunetti appeared on The Faith Middleton Show to raise PH awareness on Nov. 15. Steve says, “I don't think we could have asked for a better 17 minutes even if we had scripted the whole thing ourselves.” » Listen now

Medical Community Bulletin


Speaker giving a presentation

Building Medical Education in PH

Building Medical Education in PH events are designed to foster partnerships between PHA and PH Centers to promote continuing education in the field of pulmonary hypertension through CME educational events. Enhance the impact of your center’s medical education program by partnering with PHA! » Learn more



PHA Preceptorship Program

30-City Program Concludes for 2010

Thank you to everyone who helped make PHA’s 30-City Medical Education Program a huge success in 2010. All 30 programs are now complete, and with an average of 43 attendees per meeting, we far exceeded our initial goal of 20. » Stay tuned for 2011 and learn more

Also of Interest
    Ellen Harris

PH Patient Advocates for Compassionate Allowance Listing  

Ellen Harris recently testified at a Social Security Administration (SSA) hearing, advocating for the inclusion of pulmonary hypertension in the SSA’s Compassionate Allowance program. » Learn more and watch the hearing 

PH News Headlines


» Eye on Health: Lung Disease 

» Lung Disease Common in Adolescents with HIV in Zimbabwe

» Health Fair, Walk Aim to Raise Awareness of Lung Condition

» Anticlotting Drug May Be Alternate to Warfarin

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Upcoming Events

Dec. 5, 2010
Islanders PHA Fundraiser
Uniondale, P.A.

Dec. 18, 2010
Baltimore Blast (Professional Soccer Team) Fundraiser
Baltimore, Md.

» Go to the Events Calendar

Video

Video of a proclamation being issued

Watch as Perry Mamigonian, Josh Daniels, and Brenda Vang from the Fresno County Support Group address the Fresno County Board of Supervisors and receive a proclamation recognizing November as Pulmonary Hypertension Awareness Month.

Quick Poll Results from Last Week

I’m looking forward to Thanksgiving because…

22.2% - The food is great!    
22.2% - I get to hang out with family and friends.
0% - I get time off work.  
11.1% - I love football!
44.4% - All of the above

Look for a new question in the next issue!

PHA Classroom News Feed. Sign up to receive alerts about events & recordings.


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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.