Featured Campaign: Mississippi River Swim

Town hall meeting

"Pulmonary Hypertension is such a serious disease and I am ashamed to say I never knew anything about it until Nicky passed away. Living in the South means a lot of people live in rural areas. The most rewarding thing about this [benefit and swim] is that I have talked to so many people who thought they were alone until they read one of the articles…

...Getting the word ‘out there’ about PH is the most rewarding thing I have ever done and I don’t intend to stop."
- Lil Long, July 2010

The Long Battle for Nicky Media Library

Lil’s fierce determination to accomplish her year-long goal of swimming across the Mississippi River grabbed the attention of regional print and broadcast media as early as the fall of 2009. Play any of the videos below, and learn more about Lil's PH journey.

Determination in the Delta video | Delta News interview | News Channel 3 interview | Delta News clip

Determination in the Delta: Meeting the Challenge of Pulmonary Hypertension (PHA)


WXVT Delta News (Greenville/Greenwood/Cleveland, Miss.) Delta Daybreak morning show interview– July 15, 2010


WREG News Channel 3 (Memphis, Tenn.) Live at 9 morning show interview – June 28, 2010


WXVT Delta News (Greenville/Greenwood/Cleveland, Miss.) News clip – Fall 2009



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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.