For those for whom it would be helpful, PHA has a developed a resource, Mourning a Loved One: A Guide to Grieving. We welcome all loved ones to remain a part of our community for as long as it is beneficial.
For more information, or to request a print version of this guide, please contact Bereavement@PHAssociation.org or 301-565-3004 x803.
PH Email Mentors are caring and knowledgeable members of the PH community. Mentors are available to support bereaved members of the PH community. Contact a Mentor
This group is intended to provide a safe and supportive space for parents who have lost their child to PH or related conditions, as well as for those who wish to provide support.
Beyond PHA Resources
GriefNet.org is an Online support community for people dealing with grief, death, and major loss, with over fifty monitored support groups for both kids and adults.
GriefShare.org is a friendly, caring group of people who will walk alongside you through one of life’s most difficult experiences. You don’t have to go through the grieving process alone.
Compassionate Friends is a national, self-help organization for those grieving the loss of a child. Includes a Chapter Locator and supportive online brochures on various aspects of grief.
HealGrief.org has been established to create universal awareness and understanding of grief and provide a virtual community, without geographical boundaries, where individuals can connect, heal and memorialize their loved ones.
Sesame Street Grief Resources for Families
For those who have lost a Spouse
Light a virtual memorial candle