For those for whom it would be helpful, PHA has a developed a resource, Mourning a Loved One: A Guide to Grieving. We welcome all loved ones to remain a part of our community for as long as it is beneficial.
For more information, or to request a print version of this guide, please contact Bereavement@PHAssociation.org or 301-565-3004 x800.
PH Email Mentors are caring and knowledgeable members of the PH community. Mentors are available to support bereaved members of the PH community. Contact a Mentor (requires sign-in)
If you prefer not to create a web account but wish to contact a bereavement Mentor, email Bereavement@PHAssociation.org to be connected with a Mentor.
This group is intended to provide a safe and supportive space for parents who have lost their child to PH or related conditions, as well as for those who wish to provide support.