Bereavement

For those for whom it would be helpful, PHA has a developed a resource, Mourning a Loved One: A Guide to Grieving. We welcome all loved ones to remain a part of our community for as long as it is beneficial.

For more information, or to request a print version of this guide, please contact Bereavement@PHAssociation.org or 301-565-3004 x800.

Email Mentors

PH Email Mentors are caring and knowledgeable members of the PH community. Mentors are available to support bereaved members of the PH community. Contact a Mentor (requires sign-in)

If you prefer not to create a web account but wish to contact a bereavement Mentor, email Bereavement@PHAssociation.org to be connected with a Mentor.

PHA_BereavedParents

This group is intended to provide a safe and supportive space for parents who have lost their child to PH or related conditions, as well as for those who wish to provide support.
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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.