January 26, 2011

PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post

A note about Pathlight ... and a few more words

This morning, the first e-mail I saw was from John Hess. John, whose son is a patient, has been a volunteer on a number of projects and activities over the years and, more recently, has joined the PHA Board of Trustees. He wrote... » Read more

What's In This Issue

» Spotlight On... PH Patient in NY Times
» Get Smart
» Living Better with PH
» From the PHA News Desk

» Medical Community Bulletin
» Also of Interest
» PH News Headlines

Spotlight On...

PH Patient Diane Ramirez Featured in The New York Times!

A BIG congratulations goes out to Diane Ramirez who was profiled in The New York Times regular feature, Patient Voices. The multimedia piece profiles several patients with rare diseases. » Listen to Diane on The New York Times website

Get Smart

PH Treatments: What's on the Horizon

Tuesday, Feb. 1, 3:30 p.m. ET, Webinar
It's an exciting time for PAH research. Over the past 13 years, eight PAH therapies have been approved by the FDA. Michael McGoon, MD, from the Mayo Clinic will lead a discussion about new treatments available and treatments currently in the pipeline. » Register now


Planting the Seeds for a Successful Spring Fundraiser

Thursday, Feb. 3, 3:00 p.m. ET, Webinar
Planning to organize a fundraiser, but need some additional information and advice? Join PHA’s Jessica McKearin and Jenna Roe for an overview of event planning and advice from seasoned special event planners. » Register Now


New Recordings Available in PHA Classroom

More recorded sessions from our 9th International PH Conference are now available in PHA Classroom! Topics include: Emergency Situations, the Journey through Clinical Trials, Taking an Active Role in Your Healthcare Decisions and more. Additional sessions coming soon! » View new sessions

Living Better with PH

PH Plus... HIV

HIV patients, visit PHA’s website to download educational resources for you and your medical team. You can also join PH Plus, an email group for PH patients with associated diseases, to find support and share information. Learn more | Join PH Plus

From the PHA News Desk

50 State Media Challenge: Get PH News Coverage in Your State!

In 2011, the PH community is building on past media successes and working together to ensure that our neighbors in every corner of the U.S. can put a face to pulmonary hypertension. » Join the challenge today!

Find More Information on Healthcare Reform

PHA launched a new Healthcare Reform section online, with updates on healthcare reform policy and opportunities for community dialogue. Let us know how healthcare reform affects you and check out what other PH patients are saying. » View section


Website Down for Maintenance

PHA’s website will be down for maintenance on Sunday, February 6, at 2:00 a.m. ET for 6-8 hours. PHA’s discussion board will still be available during this time by going directly to Contact our webmaster Diane if you have any questions at or 301-565-3004 x759.

Medical Community Bulletin

PH in Systemic Sclerosis Live Webinar

Thursday, Jan. 27, 6:00 p.m. ET, Webinar
Virginia Steen, MD, will host a live webinar discussing "PH in Systemic Sclerosis" on PHA Online University. This webinar is FREE for medical professionals and is eligible for CME/CEU credits after completion. » Register now


PH Resource Network Symposium: Call for Abstracts!

Help build the field of pulmonary hypertension: submit an abstract! Allied health professionals, consider submitting your research abstracts for presentation at the 2011 PH Resource Network Symposium Poster Hall in September. » Learn more
Also of Interest

Tell Ariz. Governor to Reinstate Medicaid Funding for Transplants!

As we reported in the last issue of PHANews, 98 beneficiaries who had been previously told they were approved for transplantation under Arizona Medicaid were removed from the waiting list because funding for the procedure had been cut from the budget in a money-saving measure. » Read more and take action

PH News Headlines

» A Dream Is a Wish Your Heart Makes

» Survival after Pulmonary Thromboendarterectomy: Effect of Residual Pulmonary Hypertension

» Being a Caregiver from Afar Can Pose Challenges

» PH Medication on Its Way for Boy in Australia

» Medical Patients Aided by Joey Pouch

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Upcoming Events

Feb. 1, 2011
PH Treatments: What's on the Horizon
webinar: online and phone

Feb. 3, 2011
Special Events 101: Planting the Seeds for a Successful Spring Fundraiser
webinar: online and phone

Feb. 17, 2011
PHA Parents Telephone Support Group

» Go to the Events Calendar

Conference Video

PH Resource Network Symposium Advocacy Day

Watch allied health professionals share their thoughts on the success of PH Resource Network Advocacy Day 2009. Share the 2011 Symposium Save the Date card with your medical professionals and join the 435 Campaign for advocacy updates.

Quick Poll

What is your biggest challenge to healthy eating?

» Take our Quick Poll!

Need more information? Contact
Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.