February 9, 2011 >> back to issue

PHers Lock in Support for the PH Research Act

Congressional visit with Rep. Van Hollen (D_MD)L to R: PH patient Conchita Watson, Rep. Van Hollen (D-MD),
PH patient Georgia Milosevic, PHA President Rino Aldrighetti,
PHA's Advocacy and Awareness Director Katie Kroner, and
PHA's Washington representative Gavin Lindberg

PH patients Conchita Watson and Georgia Milosevic met with Representative Chris Van Hollen (D-MD) in his Rockville, Md., office last week. After hearing about the challenges the PH community faces — from misdiagnosis to complex and expensive treatment — the Congressman agreed on the spot to co-sponsor the Tom Lantos Pulmonary Hypertension Research and Education Act of 2011 when it is introduced later this year.

As Rep. Van Hollen said, Georgia’s and Conchita’s stories provided “a clear example of why we need more research and public awareness about pulmonary hypertension.” To read more about this visit, check out PHA President Rino Aldrighetti's recent blog entry.

We need you. Anyone with a connection to PH can build support in Congress for PH research and awareness programs. To learn more about scheduling a visit with your Members of Congress, contact Elisabeth at 301-505-3004 x749 or


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.