DONOR PRIVACY POLICY

Third Party Release Protection

Except as provided herein, the Pulmonary Hypertension Association will not sell or share to any third party your name, address, email address, phone number and member name, unless you provide your informed consent, except to the extent necessary to comply with applicable laws, police investigations, or in legal proceedings where such information is relevant. The Pulmonary Hypertension Association allows access to database information by third parties providing technical services, such as email or IT support. In those instances, the third party is bound by these terms and has agreed to hold this information in confidence. Your informed consent shall be in the form of an "opt in" or similar policy.

You understand and agree that the Pulmonary Hypertension Association may disclose to third parties your zip code, gender and/or age, but only in the form of aggregated information.

The Pulmonary Hypertension Association reserves the right to offer you third party services and products based on the preferences that you identify during the registration process and based on your subsequent preferences; such offers may be provided to you by the Pulmonary Hypertension Association.

The Pulmonary Hypertension Association shares medical membership information with third party institutions participating in the Building Medical Education in Pulmonary Hypertension program for their one time use. In these cases the institution is required to sign a one time use agreement before the membership list is shared.

The Pulmonary Hypertension Association reserves the right to terminate your account if it learns that you have provided false or misleading registration information.

Recognizing Donors

PHA publishes the names of its donors in Pathlight, our quarterly newsletter, in addition to other publications throughout the year. If you do not wish your name to be published, please contact us in writing.

For more detailed information on PHA's standards for protecting privacy, please read our entire Privacy Policy.

 

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.