February 23, 2011

       
PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President



PHA's History: Holding true...

Are we who we started out to be?
Here - in its entirety - is the lead article from the third issue of Pathlight, published in November of 1990. » Read more

What's In This Issue


» Spotlight On... PHA on the Road
» Get Smart
» Living Better with PH
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» Also of Interest
» PH News Headlines

Spotlight On...



PHA on the Road is Back!

PHA is heading back “on the road” in June! PHA on the Road will visit four new cities in 2011: Seattle (June 4), Pittsburgh (June 11), St. Louis (June 11) and Minneapolis (June 18). » Learn more

Get Smart



PIM-1: A New Hope for the Diagnosis and Treatment of PH

Friday, March 25, 2:00 p.m. ET, Webinar
Recently, Dr. Sebastien Bonnet discovered the PIM-1 protein, a protein virtually unseen in individuals who don't have PH, but detectible in PH patients. Dr. Bonnet will discuss his research and the relationship between PIM-1 and PH in patients. » Register now

   

PHA Classroom: New Recordings Posted!

The education never stops at PHA Classroom! The final batch of recorded sessions from our 9th International PH Conference is now available. Don’t worry, we will have webinar recordings and other sessions to post soon. » View new sessions

Living Better with PH



Speak Your Mind So PHA Can Serve You Better!

PHA offers special programs for newly diagnosed patients, young adults, patients with associated diseases, and families of children with PH. If you belong to any of these groups, we want to hear from you! » Fill out our survey

PH Community Scoop



Thanks for Puckering Up! We Did It!

Congratulations, PHriends! You leant your lips to save lives, and on February 18 Guinness World Records™ representatives logged and verified nearly 55,000 blue lip prints – making our community the newest record-holder! » Read more about the official announcement
   

Testimonial from the PH Community

Nicole Cooper, Baltimore Support Group Leader, says, “Family is good and great, but they don't have PH - they don't know what I'm going through like support group members do.” » Learn more about support groups
From the PHA News Desk
   

50 State Media Challenge: Eight States and Counting

Since the beginning of 2011 (seven short weeks ago!), PHers have received media coverage in eight states. In March, help us double that number to 16! See if your state has had a media success and find out how you can get involved in the challenge.

  Medical Community Bulletin



Apply for PHA/Pfizer Proof of Concept Research Grants

These grants support new research projects in the early exploratory and developmental stages that have the potential to lead to advances in the scientific understanding of PH. Submission deadline is March 15, 2011, at 9 a.m. ET. Learn more | Find out about PHA's research program
   

PHA Online University Course: Treatment of WHO Group I PAH

Hosted by Fernando Torres, MD, this course looks at WHO Group I PAH patients and how pathophysiology affects treatment decisions and how risk characterization guides treatment approach. FREE CME Credits are available after completion of a post-test and evaluation. » Learn more
   

PH Resource Network Symposium: Call for Abstracts!

Help build the field of pulmonary hypertension: Submit an abstract! Allied health professionals, consider submitting your research abstracts for presentation at the 2011 PH Resource Network Symposium Poster Hall in September. » Learn more

   

BME Event in California

The 4th International Neonatal and Childhood Pulmonary Vascular Disease Conference will take place on Friday, March 11, in San Francisco. This event will bring together international experts to explore the current understanding of the basic pathobiology and therapies for neonatal, pediatric, and adult pulmonary vascular diseases. » Learn more
Also of Interest



Take Action: Urge Congress to Increase NIH Funding!

Congress is considering cuts of $1 billion or more to the National Institutes of Health 2011 budget. These cuts would impact all of NIH’s work, including their research on PH. Call your Members of Congress today and urge them to fund NIH at $32 billion in fiscal year 2011!
     

Department of Defense Funds and Features PH Research

Lisa Palmer, a researcher studying S-nitrosylation and the development of pulmonary hypertension, received $946,875 from the Department of Defense to fund her work, which was recently featured on the DOD website. » Learn more

   

Rare Disease Day Less Than a Week Away!

Each of the 7,000 rare diseases impacts fewer than 200,000 people in the U.S. Together they affect more than 25 million Americans. Rare Disease Day, February 28, is an international effort to raise the profile of these little-known conditions. Learn more | Tell PHA how you're involved

PH News Headlines


» Pulmonary Hypertension Patients Form Support Group | Connect with this group

» Georgetown Mom Travels "Rough Road" Suffering from Pulmonary Hypertension

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Upcoming Events

Feb. 25-26, 2011
10th Annual British Columbia PH Society Symposium
Vancouver, BC

March 11, 2011
4th International Conference Neonatal and Childhood Pulmonary Vascular Disease
for medical professionals
San Francisco, Calif.

March 11, 2011
4th Annual Fish Fry
San Diego, Calif.


» Go to the Events Calendar

Video Journey

PH Patient Joe Barnes

Watch PH patient Joe Barnes share the story of his diagnosis and his life with pulmonary hypertension at PHA's 8th International Conference in 2008.

Become Empowered by Membership


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.