May 4, 2011

PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from Generation Hope

Finding Your Voice

This year I’ve been learning a lot about finding my voice. Not my singing voice, that is reserved for solo car rides and the occasional group karaoke. No, I mean my PH Voice. The voice that gives me the power to make a difference. » Read more

What's In This Issue

» Spotlight On... Dr. Oudiz
» Get Smart
» Website Discoveries
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» PH News Headlines

Spotlight On...

Dr. Ronald Oudiz Receives 2011 Award of Excellence in PAH Care

PHA is pleased to announce that Dr. Ronald Oudiz has been selected as the 2011 recipient of the PHA Award of Excellence in PAH Care. This prestigious award is given annually to a physician who has demonstrated clinical excellence in caring for patients with PAH, as well as exceptional support for the development of the PH community. » Read more
Get Smart

PHA on the Road Speakers Confirmed

Speakers are confirmed for the PHA on the Road forums taking place in Seattle (June 4), Pittsburgh (June 11), St. Louis (June 11) and Minneapolis (June 18). Check the list for your city to see if your medical professional is presenting! » Learn more


PHA Classroom: May e-Learning Events

May is full of opportunities to learn more in PHA Classroom. Dates for upcoming live webinars will be announced soon and include "Fighting the Cause Online" and "PHA on the Road: Roadmap to the Forum." Whether live or recorded, education is always available in PHA Classroom! » Learn more


ATS 5th Annual Free Patient Forum

Saturday, May 14, 10:00 a.m., Denver, Colo.
In conjunction with the American Thoracic Society, PHA is hosting a special “Meet the Experts” event in Denver on Saturday, May 14. Patients can learn about the latest in research, clinical trials and clinical care from PH experts. » Learn more and register


Parents Support Group Webinar: Pediatric Research Review

Thursday, May 19, 8:30 p.m. ET/5:30 p.m. PT
Presenter: Dr. Dunbar Ivy
The current PH medications used to treat children and the novel therapies that may be studied in children will be presented. We will also review some of the recent results of pediatric studies. » Register now

Website Discoveries

Things I Found by Kathryn Frix: PHA Events Calendar

Have you ever wondered about upcoming PH events but did not know quite where to look for the information? Have I got the answer for you! The PHA Events Calendar can be your go-to resource. » Read more

PH Community Scoop

PHA Mentor Spotlight: Liz Brigham

After being diagnosed in 2004, Liz found perspective and hope from other PH patients. Now she finds meaning in her own life by supporting others in the same boat. Meet Liz | Learn more about PHA Mentors

New Online Event Seeks Positive Spirits

Do you have a positive spirit and a recent photo of yourself? Why not put them to use by participating in PHAmerica Honors? You could be the next PHAmerica Ambassador. » Learn more about this event on Facebook (must have a Facebook account)
From the PHA News Desk

PHers Shout Out During National PH Call-In Day

Members of Congress received more than 100 phone calls from PHers and their friends on April 26 — the inaugural National PH Call-In Day. That's the most calls the PH community has ever made on a single day, and legislative staff can expect a lot more. » Read more

Making a Difference, Year After Year

Twenty years ago, there was no hope, little knowledge and scant research about pulmonary hypertension. Today is different. With the financial support of our community, hope is alive and knowledge and research are flourishing. You can help us achieve even more. Learn more | Donate now

Medical Community Bulletin

Destinations Announced for 2011 30 City Medical Education Program

PHA is pleased to announce destinations for the 2011 30 City Medical Education Program, which travels to U.S. cities without nationally recognized PAH centers and provides training for physicians and other healthcare professionals about the diagnosis and management of PAH. The dates for these programs will be announced soon. » Find out where we'll be in 2011


Invitation for Physicians and Researchers to Attend ATS Event

Actelion Pharmaceuticals US, Inc. and the ENTELLIGENCE Steering Committee invite physicians and researchers to the 2011 ENTELLIGENCE™ Young Investigators Award Ceremony to be held on May 17 during the upcoming American Thoracic Society (ATS) meeting in Denver. » Learn more (PDF)

Building Medical Education Event Takes Place in New England

Yale University School of Medicine will host the 5th Annual PH Symposium on Tuesday, June 7, in New Britain, Conn. This symposium will explore the role of echocardiography in diagnosis of PH, update medical professionals on current treatments and discuss the impact on quality of life in patients. » Learn more

Abstract Deadline Extended for PH Professional Network Symposium

Want to submit an abstract for the PH Professional Network Symposium but need more time? The deadline for abstract submission has been extended until July 25, 2011. Sample abstracts, templates and guidelines are available to assist you with your submission. » Learn more

PHA Online University Course: PH Associated with Interstitial Lung Disease

Hosted by Zeenat Safdar, MD, this course will discuss PH associated with interstitial lung disease by providing information about its mechanisms of development, clinical features, diagnostics and possible treatment options. FREE CME credits are available after completion of a post-test and evaluation. » Learn more
PH News Headlines

» Pulmonary Arterial Hypertension: An Early Diagnosis Makes a Difference

» Lisbon Woman, 25, Awaits Double Lung Transplant to Deal with Rare Conditions

» More News

Connect with PHA

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Upcoming Events

May 14, 2011
Cure PH Golf Tournament
Clemmons, N.C.

May 14, 2011
The American Thoracic Society's 5th Annual Free Patient Forum
Denver, Colo.

May 19, 2011
PHA Parents Telephone Support Group Webinar

» Go to the Events Calendar

Video Spotlight

Walk 2 Cure PH

Watch this video montage of highlights from the inaugural Walk 2 Cure PH: The Ellie Godina Memorial Walk on April 9, 2011, in Euclid, Ohio.

Patient-to-Patient Support Line

Our Workplace Has A Heart

Need more information? Contact
Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.