May 4, 2011 >> back to issue

PHers Shout Out During National PH Call-In Day

I called my rep today. Took almost no time at all. By the time I was done, my fresh cup of coffee was still hot!
~ Colleen Brunetti

Elisabeth WilliamsPHA staffer Elisabeth Williams calls
Representative Eleanor Holmes Norton on
PHA’s National Call-In Day.
Members of Congress received more than 100 phone calls from PHers and their friends on April 26 — the inaugural National PH Call-In Day — urging them to support the Tom Lantos Pulmonary Hypertension Research and Education Act of 2011. That's the most calls the PH community has ever made on a single day, and legislative staff can expect a lot more.

One activist not only called his own members of Congress but also emailed 300 friends to spread the call request beyond the PH community. Within 24 hours, two health legislative assistants on Capitol Hill had contacted Representative Kevin Brady’s office to learn more about becoming an original co-sponsor of the bill and many more congressional staff were doing their homework on PH.

“It makes me really proud to see all the posts on here about people’s experiences calling their representatives today,” said Stuart Berwick about posts on Facebook in response to National Call-In Day. Chris Leber Morres added, “It’s a proud day for PH!”

Thanks to your calls, we're one step closer to passing a PH bill — help us keep the momentum going! Visit the Advocacy Action Center to send an email to your Members of Congress. Contact Advocacy@PHAssociation.org to learn more about scheduling a visit with your Members of Congress while they are "working from home" in your state. If you made a call on April 26, take a moment today to follow up with your senators and representative.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.