Diane RamirezPHA Board of Trustees

Diane Ramirez

Advocacy Chair, Piedmont North Carolina Support Group
Lexington, N.C.
Board term ending: January 2014 (first term)

Diane is a long-term survivor of PH, having lived with the disease for over 20 years. When she was first diagnosed there were no treatments available; the only option was a heart-lung transplant. Instead of giving up hope, Diane made a decision to raise awareness of PH by talking to the media.

Over the years, Diane has spoken to every member of the North Carolina delegation to gather support for the Tom Lantos Research and Education Act. She also has spoken to numerous media outlets and her story has appeared in many well-known newspapers or TV shows. Diane’s most recent media successes include an interview on Dr. Radio with PH specialist Dr. Val McLaughlin and a feature in the Patient Voices section of the New York Times.

Diane is also an energetic and involved member of the PHA community. She spoke on numerous occasions during the 2010 Conference. She is also the Advocacy Chair of her support group and regularly presents to her group and others about the importance of advocacy.

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.