PHANews Archives

The following archives are provided for historical purposes only. Given the changing nature of the web, some links may have expired, but each past issue will still give you a sense of what was going on in the PH community at any given time.

2014 | 2013 | 20122011 | 2010 | 2009 

2011

December 14, 2011 - PHers Score 50+ News Stories

  • Blog from PHA's President: Opening a Door to PH Pediatric Research
  • Spotlight On... 50 State Media Challenge
  • Get Smart: Holiday Eating Recorded Webinar
  • Website Discoveries: Lantos Awards
  • PH Community Scoop: An Event-ful Awareness Month, Telephone Support Groups for Parents and Caregivers
  • From the PHA News Desk: Conference Email Alerts, Make a Gift to PHA and It Doubles, Transplant Email Group
  • PH News Headlines

November 30, 2011 - Awareness Building in Congress

  • Spotlight On... Congressional Luncheon
  • Get Smart: Update in PH Symposium in Cambridge, Mass.
  • PH Community Scoop: North Texas Fun Walk/5k Run Raises Hope and Funds for PHA; Virtual Candlelight Vigil
  • From the PHA News Desk: PH Community Proclaims November PH Awareness Month; Move PHA toward a Brighter Future
  • Medical Community Bulletin: Call for Abstracts for Conference; Request for Proposal: Studies of the Right Ventricular Response to Therapy in Patients with PAH
  • Also of Interest: Last Call: Medicare Open Enrollment Closes Dec. 7
  • PH News Headlines

November 16, 2011 - 2012 Conference Website Live, Scholarships Open

  • Spotlight On... Lantos Awards
  • Get Smart: Recorded Webinar on Early Diagnosis Now Available
  • Living Better with PH: Holiday Travel with PH
  • PH Community Scoop: What's New? PH Awareness Month Successes!; Parents Telephone Support Group: Holiday Season; Patient Telephone Support Group
  • From the PHA News Desk: 2012 Conference Website Launched!; Patient Scholarship Program for Conference Accepting Applications; Join PHA's Transplant Email Group
  • Medical Community Bulletin: Demystifying PAH
  • Also of Interest: Participate in the EveryLife Art Contest
  • PH News Headlines

November 2, 2011 - Welcome to PH Awareness Month!

  • Spotlight On... Congressional Luncheon Nov. 15
  • Get Smart: Webinar on Early Diagnosis; Symposium and Patient Day; Creative Expression for Wellbeing Webinar Recording Available
  • Website Discoveries: Things I Found: Caregiver Shout-Outs
  • PH Community Scoop: Caregivers Telephone Support Group; Parents Telephone Support Group: Holiday Season
  • From the PHA News Desk: PHA Wants to Fund Your Great Idea
  • Medical Community Bulletin: PH Summit in Cleveland; Demystifying PAH
  • Also of Interest: Celebrate World COPD Day
  • PH News Headlines

October 19, 2011 - PH Awareness Day, Congressional Luncheon Date Set

  • Spotlight On... PH Online Awareness Day Nov. 1
  • Get Smart: Explaining PH to Your Child Webinar; Symposium and Patient Day; Awareness Month 2011 Tips Webinar Recording Available
  • Living Better with PH: Empowered Patient Online Toolkit
  • PH Community Scoop: Request a PH Awareness Month Proclamation; Participate in PHA's Patient Telephone Support Group; Become a Patient-to-Patient Support Line Volunteer
  • From the PHA News Desk: Congressional Luncheon Date Set; PHA Membership Special; Join PHA's Transplant Email Group; Participate in Conference 2012 Exhibit Hall Survey
  • Medical Community Bulletin: PH Summit in Cleveland; Building Medical Education in PH Mini Convention in Kansas; PHA Online University: New Pediatric Courses Added
  • Also of Interest: Medicare Open Enrollment Starts Early This Year
  • PH News Headlines

October 5, 2011 - Six-Minute Marathons, Videos & Quilts

  • Spotlight On... Six-Minute Marathon
  • Get Smart: Creative Expression Webinar; Explaining PH to Your Child Webinar
  • Website Discoveries: Things I Found: Videos for Patients
  • PH Community Scoop: Thank You, Colorado "PH-ers"!; Thank You, September Special Event Planners; Participate in PHA's Telephone Support Group
  • From the PHA News Desk: CFC Donors, Designate Your Gift to PHA (#12097);Calling All Quilters!
  • Medical Community Bulletin: Groundbreaking Attendance at PHPN Symposium; Building Medical Education in PH Event in Missouri
  • PH News Headlines

September 21, 2011 - Webinars Galore!, Ask a Question

  • Spotlight On... 50 State Media Challenge
  • Get Smart: Awareness Month Ideas Webinar, Creative Expression Webinar, Explaining PH to Your Child Webinar, New Media Webinar Posting in PHA Classroom
  • Living Better with PH: New! Ask a Question, Reach a Mentor!
  • PH Community Scoop: PHA's Telephone Support Group
  • From the PHA News Desk: Raise PH Awareness and Funds, Raise Awareness in Congress, Message for Chicago and L.A. Area Residents
  • Medical Community Bulletin: New Quality Indicator Set for Systemic Sclerosis Webinar, New PHA Online University Webinar Recording
  • PH News Headlines

September 7, 2011 - Proclaim Nov. PH Awareness Month

  • Spotlight On... Awareness Month Proclamations
  • Get Smart: Caregiver Telephone Support Group, PHA Classroom Just Got Better, Webinar on Helping Others Understand PH
  • Website Discoveries: Things I Found by Kathryn Frix: Awareness Month
  • PH Community Scoop: Thank You to Summer Special Event Planners
  • From the PHA News Desk: Investing in PH Research, Using the Media to Raise Awareness in Nov.
  • Medical Community Bulletin: Webinar: New Quality Indicator Set for Systemic Sclerosis, Building Medical Education in PH Event in Missouri, PHPN Symposium Registration, PHA Online University Course: Diagnosis of PH in Children
  • PH News Headlines

August 24, 2011 - New Help for Families

  • Spotlight On... District Visit Victories! PHers Share Stories, Build Support
  • Get Smart: Increase PH Awareness and (Generation) Hope in the Media!; Telling Your Story: Explaining PH to Family, Friends and Co-workers; Recordings from Conference 2010 General Sessions Now Available
  • Living Better with PH: Getting Down to Business with PH
  • PH Community Scoop: PHA Launches Telephone Support Group: Looking for Your Feedback!; Wanted: Support Line Volunteers
  • From the PHA News Desk: Volunteer with PHA; Se Voluntario para PHA
  • Medical Community Bulletin: PHA to Launch New Find a Doctor Directory; Design and Validation of an Endothelial Progenitor Cell Capture Chip and Its Application in Patients with PAH; Making the Most of a Legislative Visit; Building Medical Education in PH Event in Colo.; Symposium is One Month Away: There is Still Time to Register!; Clinical Trial Investigators: Attend a FREE Training!
  • Also of Interest: African American Scleroderma Patient Education Day; Affordable Care Act 101 Interactive Call: You're Invited!
  • PH News Headlines

August 10, 2011 - Conference 2012 Theme Chosen

  • Spotlight On... Conference 2012 Theme
  • Get Smart: Parents Telephone Support Group: Balance - Caring for Yourself; PHA on the Road: Session Recordings Now Available
  • Living Better with PH: 16 Tips to Help Shake Your Sodium Habit
  • PH Community Scoop: 7th and Last Calif. PH Forum; Participate in PHA's Telephone Support Group
  • From the PHA News Desk: New Resource Packet for Caregivers; Give to Research: The Path to Long, Healthier Lives; A Fresh Face for CARD-iology
  • Medical Community Bulletin: PHA to Launch New Find a Doctor Directory; Building Medical Education in PH Event in Fla.; Advocacy Day at Symposium: Be the Voice of the PH Community; PHA Online University Live Webinar: Making the Most of a Legislative Visit; Fewer than 90 FREE Symposium Registrations Remain!; FREE Training Available for Clinical Trial Investigators
  • Also of Interest: Nominate Your Amazing Nurse; New Disease States Added to Compassionate Allowances
  • PH News Headlines

July 27, 2011 - Bunco and PH: What's the Connection?

  • Spotlight On... Inspired Events
  • Get Smart: PHA on the Road: A Photo Journey
  • Website Discoveries: Things I Found by Kathryn Frix: 50 State Media Challenge
  • From the PHA News Desk: Making Every Step Count the PHA Way; What Do You Want to Know About Transplant?
  • Medical Community Bulletin: Live Webinar: The Role of the Respiratory Therapist in the Treatment of the PH Patient; Building Medical Education in PH Event in Fla.; FREE Investigator Training Program; Less than 100 FREE Symposium Registrations Remain!
  • PH News Headlines

July 13, 2011 - MedicAlert Offer for PH Patients

  • Spotlight On... MedicAlert Discount
  • Get Smart: Parents Support Group Webinar: Obtaining and Maintaining Insurance Coverage for Your Child; New Recordings Available in PHA Classroom
  • Living Better with PH: Stay Strong, Together
  • PH Community Scoop: Young Adults, Take Action!
  • From the PHA News Desk: PHA Launches Telephone Support Group
  • Medical Community Bulletin: Investigator Training Program; Live Webinar: The Role of the Respiratory Therapist in the Treatment of the PH Patient; Curso de La Universidad En-Linea de PHA: Hipertension Pulmonar, Enfoque General y Clasificacion; PHA Online University Course: Pulmonary Hypertension, Overview and Classification; FREE CE/CME Credits Offered at Symposium
  • Also of Interest: Attention, All Original Medicare Beneficiaries!
  • PH News Headlines

June 29, 2011 - PHA Sends 100+ Letters to Congress

  • Spotlight On... PHA on the Road Attendees Exceed Congressional Letter Writing Goal
  • Get Smart: Newly Diagnosed? What You Need to Know; Fight the Cause Online; Parents Support Group Webinar: Obtaining and Maintaining Insurance Coverage for Your Child; PHA on the Road: 2011 Road Trip Wrap-up; Submit a Theme for the 2012 International PH Conference!
  • Website Discoveries: Things I Found by Kathryn Frix: My Account
  • PH Community Scoop: June Special Events Make a Big Splash!; Busque Noticias? PH Latin Society Newsletter Available Online
  • From the PHA News Desk: Legislative Visit Builds Support for PH Bill, PH Research; Education and Hope in Three Minutes or Less; PHA's 2011 Calendar Wins APEX Award
  • Medical Community Bulletin: Fewer Than 120 FREE Registrations Left!; PHA Online University Course: PH in Scleroderma, from a Nurse's Perspective
  • Also of Interest: Join PH Patient Kim Ford for July 8 PH Awareness Day; 50 State Media Challenge: Jim Gebhardt Links Passion and PH Awareness
  • PH News Headlines

June 15, 2011 - PH Advocacy Goes on the Road

  • Spotlight On... PH Advocacy Goes on the Road
  • Get Smart: Parents Telephone Support Group Call: Prepare for Summer PHun!; PHA on the Road - Minneapolis this Weekend!; Newly Diagnosed? What You Need to Know
  • Living Better with PH: Get Organized to Feel Better, Fare Better
  • PH Community Scoop: Support Group Leaders Vital to PHA on the Road
  • From the PHA News Desk: Participate in the 2012 International PH Conference Theme Contest!
  • Medical Community Bulletin: Submit a Research or Case Study Abstract for PHPN Symposium!; PHA Preceptorship in NYC Educates 60 Medical Professionals; Gilead Sciences Research Scholars Program in PH; Actelion Awards Grants for Research in PAH
  • Also of Interest: High Risk Pools Become More Affordable, More Accessible; 7 Ways to Get Involved During Scleroderma Awareness Month
  • PH News Headlines

June 1, 2011 - PH Gets Syndicated!

  • Spotlight On... Dr. Donohue and PH Ignite the Phone Lines
  • Get Smart: e-Learning Event: Making the Most of Your Awareness Month Event; e-Learning Event: Lobby Locally - Fighting PH through District Visits; PHA on the Road: There's Still Time to Register!
  • Website Discoveries: Things I Found by Kathryn Frix: Web of Friends
  • PH Community Scoop: Media Matters Webinar Inspires PH Community to Raise Awareness
  • From the PHA News Desk: 50 State Media Challenge: Get Coverage in 35 States by Sept. 1; Advocate for PH Research on Facebook; Does Your Loved One Have PH?; Leave a Legacy of Hope
  • Medical Community Bulletin: Receive FREE Registration to Symposium; Live Webinar: "PH in Scleroderma from a Nurse's Perspective"
  • PH News Headlines

May 18, 2011 - PH Bill, Exercise Tips

  • Spotlight On... PH Bill Introduced in House of Representatives
  • Get Smart: e-Learning Recording Available: Healthcare Changes in 2011; PHA Classroom: Offerings Top 100!; Patient Services at PHA on the Road; Parents Connect and Learn
  • Living Better with PH: Live Well, Get Moving!
  • PH Community Scoop: U.S. Air Force Honors PH Patient; Thank You, Special Event Planners!
  • Medical Community Bulletin: Apply for K08/K23 Award; Gilead Sciences Research Scholars Program in PH; FUNdamentals of Writing a Research Abstract: Live Webinar!; PHA Online University Course: Pulmonary Function Testing; Dates Announced for 2011 PHA 30 City Medical Education Program
  • Also of Interest: Scleroderma Patients Gear Up for Summer Meeting in California
  • PH News Headlines

May 4, 2011 - Find Your PH Voice

  • Spotlight On... Dr. Ronald Oudiz Receives 2011 Award of Excellence in PAH Care
  • Get Smart: PHA on the Road Speakers Confirmed; PHA Classroom: May e-Learning Events; ATS 5th Annual Free Patient Forum; Parents Support Group Webinar: Pediatric Research Review
  • Website Discoveries: Things I Found by Kathryn Frix: PHA Events Calendar
  • PH Community Scoop: PHA Mentor Spotlight: Liz Brigham; New Online Event Seeks Positive Spirits
  • From the PHA News Desk: PHers Shout Out During National PH Call-In Day; Making a Difference, Year After Year
  • Medical Community Bulletin: Destinations Announced for 2011 30 City Medical Education Program; Invitation for Physicians and Researchers to Attend ATS Event; Building Medical Education Event Takes Place in New England; Abstract Deadline Extended for PH Professional Network Symposium; PHA Online University Course: PH Associated with Interstitial Lung Disease
  • PH News Headlines

April 20, 2011 - New PH Bill Needs Your Support

  • Spotlight On... New PH Bill
  • Get Smart: Parent Support Group Call; e-Learning Event on Healthcare Reform; ATS Patient Forum; PHA on the Road Registration; PHA Classroom Request for Feedback
  • Living Better with PH: Help Children Cope with a Parent's Illness
  • PH Community Scoop: Support Group 101; Thank You, Special Event Planners
  • From the PHA News Desk: PHA's National Call-In Day; 50 State Media Challenge; Making a Difference, Year After Year
  • Medical Community Bulletin: PH Professional Network Symposium Registration; PHA Online University Course; Invitation for Physicians and Researchers to Attend ATS Event
  • Also of Interest: BlueCross BlueShield Revokes Detrimental Policy
  • PH News Headlines

April 6, 2011 - Eating Bugs ... and More

  • Spotlight On... Clinical Trials Act
  • Get Smart: Insurance Success Webinar; Parent Support Group Call; PHA on the Road Family Programming; PHA Classroom Recordings
  • Website Discoveries: PHA on the Road
  • PH Community Scoop: Lantos Grant Award Winners; Walk 2 Cure PH
  • From the PHA News Desk: PHA Celebrates Volunteers; PHA's National Call-In Day; PHA Ranked Among Top 2% of U.S. Charities
  • Medical Community Bulletin: PHA Online University Course; PH Professional Network Symposium Call for Absracts
  • Also of Interest: Sign Petition Opposing Cuts to NIH; National Donate Life Month
  • PH News Headlines

March 23, 2011 - Join 50 State Challenge

  • Spotlight On... 50 State Media Challenge
  • Get Smart: Media Matters; PHA on the Road Registration
  • Living Better with PH: Find a Patient Mentor
  • PH Community Scoop: Spur a Cure for PH; Thank You, Event Planners; Find a Support Group
  • Medical Community Bulletin: PH Resource Network Gets a New Name; PH Professional Network Symposium: Registration Open; PHA Online University course
  • Also of Interest: Rare Disease Day Victories; Stop NIH and CDC Funding Cuts
  • PH News Headlines

March 9, 2011 - Check It Out: PIM-1 Protein, PH Lipgloss & More

  • Spotlight On... PHA on the Road: Registration Open!
  • Get Smart: Parents Support Group Webinar; PIM-1 Protein Webinar; Media Matters Webinar
  • Website Discoveries: PHA Classroom
  • PH Community Scoop: 2011 CrawPHish Festival; PHA Support Group Leader Manual
  • From the PHA News Desk: Special Programs Survey; Call for Poetry
  • Medical Community Bulletin: PHA Online University course
  • Also of Interest: New Lipgloss to Support PH Research
  • PH News Headlines

February 23, 2011 - Urge Congress to Increase NIH Funding

  • Spotlight On... PHA on the Road
  • Get Smart: PHA Classroom; PIM-1 Protein Webinar
  • Living Better with PH: Special Programs Survey
  • PH Community Scoop: PuckerUp4PH Guinness World Record; Community Testimonial
  • From the PHA News Desk: 50 State Media Challenge
  • Medical Community Bulletin: PHA/Pfizer Proof of Concept Grant; PHA Online University course; Call for PH Resource Network Symposium Abstracts; BME Event in Calif.
  • Also of Interest: Increase NIH Funding; DOD Funds & Features PH Research; Rare Disease Day
  • PH News Headlines

February 9, 2011 - Spread the Word About Rare Disease Day & More

  • Spotlight On... Caregiver Love
  • Get Smart: PHA Classroom; Parent Support Group Call
  • Website Discoveries: PHA Mentors; Winter Tips for Patients
  • PH Community Scoop: International Support for Arizona 98; Transplant Email Group
  • From the PHA News Desk: Coverage Connection; Support for PH Research Act
  • Medical Community Bulletin: BME Event in Calif.; PHA Online University course recording
  • Also of Interest: Rare Disease Day; Advocate for HHT Research on Capitol Hill
  • PH News Headlines

January 26, 2011 - PH Featured in NY Times

  • Spotlight On... PH Patient in NY Times
  • Get Smart: PHA Classroom
  • Living Better with PH: PH Plus... HIV
  • From the PHA News Desk: 50 State Media Challenge; More on Healthcare Reform
  • Medical Community Bulletin: PHA Online University Live Webinar; Symposium Call for Abstracts
  • Also of Interest: Arizona 98
  • PH News Headlines

January 12, 2011 - Online Education & More

  • Spotlight On... Generation Hope Blog
  • Get Smart
  • Website Discoveries: Transplant Resources
  • PH Community Scoop
  • From the PHA News Desk
  • Medical Community Bulletin
  • Also of Interest
  • PH News Headlines

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.