PHANews Archives

The following archives are provided for historical purposes only. Given the changing nature of the web, some links may have expired, but each past issue will still give you a sense of what was going on in the PH community at any given time.

2014 | 2013 | 20122011 | 2010 | 2009 

2009

December 18, 2009

  • PHA Conference Registration Opens Jan. 13
  • Unite on the Path to a Cure
  • Connecting with People Like You Just Got Easier
  • Medicare Part D Transcript Available
  • It's Not Too Late to Avoid Holiday Weight
  • New Research Awards Announced
  • PH in the News
  • PAH Clinical Trials Debates Planned for March

December 4, 2009

  • Help Turn Senate Success into Victory!
  • Help Us Test PHA's New Website and Get a Sneak Peek
  • Choosing the Medicare Part D Plan that Works for You
  • FDA Approves Intravenous Revatio
  • Keep Up with the Path to a Cure
  • Join the Fight and Donate to PHA's End of Year Campaign
  • Thank You, November Special Events!
  • PH in the News

November 13, 2009

  • Last Chance to RSVP for the Congressional Luncheon
  • On This Test, Everyone Gets an 'A'
  • Keep Your Diet on Track During the Holidays
  • PH Community Succeeds During Awareness Month
  • Climbing Our Way to a Cure
  • Raise Awareness with Experts' Media Tips
  • H1N1 Flu Notice
  • Medicare Decides on Pulmonary Rehabilitation Coverage
  • PH in the News

October 30, 2009

  • Congressional Luncheon Update
  • Apply for a Conference Scholarship
  • Awareness Month is Here
  • Apply for the Lantos Grant for PH Awareness
  • PHA UK Announces Winner of the Lips of 2010 Campaign
  • Thank You, October Special Events Organizers!
  • PH Parents Team Up with Local Salon for Fundraising Success
  • Lead the Path to a Cure in your Town
  • Call for Abstracts at Conference!
  • PH in the News
  • PHA is Coming to Your Area!

October 16, 2009

  • Unite with the PH Community on the Path to a Cure
  • Birdies, Bids and Barbecue: Building Support for PH Research
  • Raise Awareness with Blogging, Facebook and Twitter
  • Make Your PH Community Service Idea a Reality
  • Two Conference Theme Contestants Win Scholarships
  • White House to Combat Underemployment of Americans with Disabilities
  • Sons of PH Physician Write Children's Book
  • PH in the News

October 5, 2009

  • Awareness Month Site Launched!
  • Eliminate Lifetime Insurance Caps
  • PH Resource Network Reaches Record Numbers
  • Vote Now for the Blue Lip Idol
  • Survey Prize Winners Announced
  • Raise Your Voice through the PHAware Campaign
  • Social Security Administration Video
  • Sign Up for Conference Alerts
  • Research Grant Opportunity
  • PH in the News
  • PHA is Coming to Your Area

September 18, 2009

  • Awareness Month e-Learning Event
  • Apply Now for a $5,000 PH Community Services Grant
  • September Events Bring Us Closer to a Cure
  • Living Outside the U.S.? Share Your Conference Suggestions!
  • Add Your Voice to the National Network Advocating for PH Research
  • PH in the News
  • September 4 Special Alert
  • Fact Sheet Released on Pulmonary Hypertension and Stem Cell Therapy

September 4, 2009

  • Countdown to PH Resource Network Symposium
  • New PHAware Campaign Tools Make Raising Awareness Easier than Ever
  • Back to School with PH? Check Out the School Resource Handbook for Parents!
  • New Inroads Made by Support Groups
  • International Seed Grant Awarded to Abraf Brazil
  • What is PHA's Position on Healthcare Reform?
  • Read the Summer Issue of Advances in PH
  • PH in the News
  • Upcoming Education Events for Patients and Medical Professionals

August 21, 2009

  • Action Alert: Medicare Coverage for Pulmonary Rehab
  • Fight Against PH Making Global Gains
  • Defeating PH Can Be More Than a Wish: Donate to PH Research
  • Symposium: Spotlight on Advocacy Day
  • Teen with PH & Scleroderma Finds Her Sound
  • Awareness Month is Coming!
  • Become a Hero by Fundraising for a Cure
  • Patient-Professional Dialogue Fostered on New Newsletter
  • Access to Investigational Drugs Expanded
  • PH in the News

August 7, 2009

  • New PH Treatment Approved by FDA!
  • Announcing 2009 Research Grant Winners
  • What's a Bug Boil & What Does it Have to Do with Curing PH?
  • PHA On the Road Recordings Posted
  • Fun in the Sun at MN Picnic
  • All Natural Does Not Mean All Safe
  • PHA's Insurance Survey Closing Aug 15
  • PH in the News
  • BME in Florida Aug 29
  • Cool Off with a PHA Water Bottle
  • Latest Planned Giving e-Brochure

July 24, 2009

  • PHA On the Road Now Online
  • Take PHA's Insurance Surveys
  • Balancing PH and Work
  • Symposium Scholarships
  • Focus Group Survey
  • PH in the News

July 10, 2009

  • Pucker Up 4 PH
  • Take PHA's Focus Group Survey
  • Learn to Start a Support Group
  • Support Federal Funding for PH
  • e-Learning Archives Online
  • District Visits
  • Health Care Reform Proposals
  • PH in the News
  • Thanks to PHA Supporters!

June 26, 2009

  • Upcoming E-Learning Events
  • Conference Theme Contest Closing
  • PHA On The Road Successful
  • Insurance Resources
  • New "Our Journeys" Posted
  • PH in the News

June 12, 2009

  • Encourage Health Professionals to Attend Symposium
  • Safety Tips for Summer
  • Prescription Assistance
  • PH Action Alert - Support Scleroderma Research
  • PH Tip Sheets
  • PH in the News

June 3, 2009

  • Summer Safety Tips e-Learning Event

May 29, 2009

  • Dr. Nicholas Hill Awarded for Excellence in PAH Care
  • Statement on Stem Cells from SLC
  • Conference Theme Contest
  • Registration Closed for PHA on the Road!
  • Former Caregiver Now Inspirational Event Planner
  • Winter 08-09 Journal
  • PH in the News
  • Conference Plenary Sessions on DVD

May 22, 2009

  • Registration Closed for PHA on the Road

May 15, 2009

  • Don't Miss Out on PHA on the Road!
  • PHA International Webpage: New & Improved
  • New PH Research Opportunities
  • Become a Part of the Fight Against PH
  • PH in the News
  • California PH Forum

May 1, 2009

  • New England PHA on the Road
  • PHA'S Educational Programs Now All in One Place Online!
  • New Information on Transplant Available!
  • Raising Local Awareness
  • PH Support Groups
  • Useful Info From a PH Pediatrician
  • PH in the News
  • Building Medical Education in PH

April 20, 2009

  • Ask a Pediatrician Q&A Chat with Dr. Erika Berman Rosenzweig

April 17, 2009

  • Action Alert - Medicare Benefits
  • 30-City Medical Education Program
  • Ask A Pediatrician
  • UK Victory
  • New Benefit for PHA Members
  • Southeast Michigan PHA on the Road
  • Merle Reeseman Raises Awareness
  • New PAH Book Available
  • Dorothy Bradley Celebrates 10 Years
  • PH in the News

April 3, 2009

  • PH Action Alert - Tax Deductions
  • PH Action Alert - Insurance
  • PH Tip Sheets
  • Central FL PHA On The Road
  • 2009 PH Resource Network Symposium
  • e-Learning Event Recording
  • PH in the News
  • Car Donations

March 20, 2009

  • PH Action Alert
  • PHA On the Road
  • e-Learning Events
  • Journeys Memorials
  • Planning Ahead?
  • Regaining a Dream
  • PH in the News

March 6, 2009

  • Registration Open for PH Resource Network Symposium
  • PHA Receives 4-star Rating From Charity Navigator
  • e-Learning Events
  • A Nickel Can Make a Difference
  • Summer 2008 Journal Available
  • PH in the News

February 27, 2009

  • PHA Launches YouTube Channel

February 25, 2009

  • Medical Education Fund Special

February 20, 2009

  • Action Alert - New PH Bill!
  • PHA On the Road
  • State of PHA Address
  • PH in the News
  • For Medical Professionals
  • Free Planned Giving E-Brochures

February 6, 2009

  • 2009 PH Resource Network Symposium
  • Annual State of PHA Address
  • New Online Press Room
  • In Memoriam
  • PH in the News

January 23, 2009

  • Researcher Receives DOD Funding
  • Medicare Consumer Alert
  • e-Learning Event Recording Available
  • PH in the News
  • Building Medical Education in PH
  • Conference DVDs Available

January 9, 2009

  • Registration Open for PHA on the Road
  • January e-Learning Events
  • "PHodcast" Debuts
  • Thank You! You have Lit the Flame of Hope!
  • New Resource on Insurance Coverage
  • Thirteen Our Journeys Stories Posted
  • PH in the News
  • PVRI Annual Clinical Debates

 

2010

December 8, 2010

  • Spotlight On... Family and Friends
  • Get Smart
  • Living Better with PH
  • PH Community Scoop
  • From the PHA News Desk
  • Also of Interest
  • PH News Headlines

November 23, 2010

  • Spotlight On... Caregivers
  • Get Smart 
  • Website Discoveries 
  • PH Community Scoop
  • Medical Community Bulletin
  • Also of Interest
  • PH News Headlines

November 10, 2010

  • Spotlight On... PH Blogging Day Nov. 16
  • Get Smart
  • Living Better with PH
  • PH Community Scoop
  • From the PHA News Desk
  • Medical Community Bulletin
  • Also of Interest
  • PH News Headlines

November 4, 2010 e-Learning Events Special

  • Medicare Part D and Enrollment: Choosing a Plan that Works for You
  • Learn to Keep the PH Blues Away
  • Get Your Innovative Idea Funded

October 27, 2010

  • Spotlight On... PHA's Congressional Luncheon
  • Get Smart
  • Website Discoveries by Kathryn Frix
  • PH Community Scoop
  • From the PHA News Desk
  • Medical Community Bulletin
  • PH News Headlines

October 13, 2010

  • Spotlight On... Special Events Walks
  • Get Smart
  • Living Better with PH
  • From the PHA News Desk
  • Medical Community Bulletin
  • Also of Interest
  • PH News Headlines

September 28, 2010

  • Spotlight On... PH Patient on Local TV Show
  • Get Smart
  • Website Discoveries by Kathryn Frix
  • PH Community Scoop
  • From the PHA News Desk
  • Medical Community Bulletin
  • PH News Headlines

September 15, 2010

  • Spotlight On... PH Patient on
  • Today Show
  • Get Smart
  • Living Better with PH
  • PH Community Scoop
  • From the PHA News Desk
  • Medical Community Bulletin
  • Also of Interest
  • PH News Headlines

August 31, 2010

  • Spotlight On... August District Visits
  • Get Smart
  • Website Discoveries
  • PH Community Scoop
  • From the PHA News Desk
  • Medical Community Bulletin
  • PH News Headlines 

August 17, 2010

  • Spotlight On... PHA Classroom
  • Get Smart
  • Living Better with PH
  • PH Community Scoop
  • From the PHA News Desk
  • Medical Community Bulletin
  • PH News Headlines

August 3, 2010

  • Spotlight On... District Visits
  • Get Smart
  • Website Discoveries
  • PH Community Scoop
  • From the PHA News Desk
  • Medical Community Bulletin
  • Also of Interest
  • PH News Headlines

July 20, 2010

  • Spotlight On... Survival Guide
  • Get Smart
  • Living Better with PH
  • PH Community Scoop
  • From the PHA News Desk
  • Medical Community Bulletin
  • Also of Interest
  • PH News Headlines

back to the top

July 7, 2010

  • July e-Learning Events
  • We Have a Disease to Cure - Support Research
  • Over 1,250 Conference Registrants Rode the Wave to a Cure
  • PHA on the Road is Back
  • New Dates in 30-City Medical Education Tour
  • New Insurance Resources
  • Healthcare Reform Updates
  • Thanks to June Event Organizers
  • Patient's Awareness Efforts Reach Public, Press and Congress
  • PH in the News

June 14, 2010

  • Conference is Next Week - Hope You Can Join Us
  • PHA Mid Year Report
  • Take Action for PH Research in Congress
  • Rep. Himes Co-sponsors PH Bill Due to Persistent PHer
  • PHer to Swim Mississippi River
  • First App for PH Launched
  • Generation Hope Apparel
  • 30-City Medical Education Tour Coming to a City Near You
  • PH Research Opportunities
  • PH in the News

June 4, 2010 conference Special

  • Mark Your Calendars: Important Deadlines
  • Congratulations to the 2010 PHA Outstanding Member Award Winners
  • Pssst! Have You Heard About the New Resources Debuting at Conference?
  • Conference Scholarship Fund Rises to the Occasion
  • Overheard -- Heartfelt Thanks from Our Scholarship Recipients
  • More Conference Details Emerge...Find Out Online
  • Not Staying Overnight at the Hotel? No Problem!
  • Stay Connected to Conference

May 28, 2010

  • Take Action for NIH Funding
  • Event Coordinators Think Outside Box to Promote Event
  • Thank you, May Event Organizers
  • Largest Conference Exhibit Hall to Date
  • Webinar for Newly Diagnosed Patients
  • PH Research Opportunity
  • PH in the News

May 14, 2010

  • Free Update on PH Treatments
  • PHA's "Exceptional" Fiscal Practices Recognized
  • Find a PH-Treating Pediatrician
  • Pre-Conference Registration Closes June 9
  • Conference Fashion Show Needs Adult Volunteers
  • PHA Signs Coalition Letter Urging Rapic Elimination of All Lifetime Caps
  • Medical Education is Coming to Your Area
  • PH in the News

April 29, 2010

  • New PH Treatment
  • Information and Support for New Patients
  • Parent-to-Parent Telephone Support Group Meetings
  • Healthcare Reform and Medicare
  • Special Events Spring into Awareness-Raising Action
  • Scientific Sessions Advance the Education of Medical Professionals
  • PH in the News

April 23, 2010 Conference Special

  • Overheard Online
  • Medically Led Breakout Sessions Schedule Announced
  • Support Group Facilitators Offer Wealth of Experience
  • New Networking Opportunities
  • ¿Hablas Espanol? Tendremos Recursos Para Ti!
  • Conference Scholarship Program Awards Patients Over $171,000
  • On-Site Patient Services
  • Important Deadlines
  • Chance to Win a Prize Quick Survey

April 19, 2010

  • PH Acronym Decoder
  • FAQ for Newly Diagnosed Patients
  • PH and... Brochures for Patients with Associated Diseases
  • Your Gift Can Be a Lifeline
  • Pediatric & Family Programming at Conference
  • PHA Volunteers Make a Difference
  • Insurance Updates
  • Crawfish, Zydeco and Alligator? Oh my!
  • Invitation for Physicians and Researchers
  • PH in the News
  • We're Moving!

April 5, 2010

  • PH Doctor to Give Advice to SSA
  • Exercise & PH Webinar
  • PHA Expands Support to Caregivers and Families
  • Get Involved at Conference
  • Member Store Special for Spring
  • Orena Alsip Introduces Global Campaign in U.S.
  • New PH Online Support Group Chats in Spanish
  • Healthcare Reform & PH
  • PH in the News

March 25, 2010 Conference Special Edition

  • "Overheard" Online
  • Conference Keynote Speakers Announced
  • Plenary Sessions Line-up
  • Medically Led Breakout Session Speakers
  • Skill Building Workshops
  • Conference Blog RSS Feed
  • Conference Buddy Online Sign-up
  • Notes of Thanks and Remembrance
  • Special Disneyland Ticket Pricing
  • Traveling with PH Webinar
  • Important Deadlines
  • Journeys to Conference Stories 

March 19, 2010

  • More Than 1 Million People Reached by PH Awareness
  • Patients Gain 2nd Senate Bill Co-sponsor
  • Attend Traveling with PH Webinar
  • Thanks to Winter Special Events
  • Welcome New Chat Host Stu Berwick
  • Stay Connected with Conference
  • PH in the News
  • Medical Events Near You

March 5, 2010

  • Kilimanjaro Climbers Reach Summit, Exceed Fundraising Goal
  • Caring Voice Coalition to Assist with PH Disability Claims
  • Show Your Appreciation to Your Loved Ones, Doctors and Nurses
  • A Message to Caregivers
  • Conference Medical Professional Deadlines Extended
  • Year of the Lung Resolution Includes PH
  • PH in the News
  • Get the Latest PH News Daily

February 19, 2010

  • Medical Professionals, Take Advantage of These Conference Opportunities!
  • Path to a Cure Team Begins Its Trek to the Top of Africa
  • Non-Patient Conference Award Provides Scholarship to a PHA Volunteer
  • Well-Deserved Recognition Goes to Committed Dad
  • Get Ready to Raise Awareness on Rare Disease Day
  • Social Security Administration Expands Compassionate Allowance Program
  • PH in the News

February 5, 2010

  • Pittsburgh Unites with Path to a Cure Climbers
  • Coming Soon: the President's Annual State of PHA Address!
  • New Ways to Network at Conference
  • Catch Up on e-Learning Events
  • PH in the News
  • Medical Education is Coming to Your Area!

January 22, 2010

  • Get Ready to Ride the Wave to a Cure
  • Small Steps Toward Making a Big Difference in Your Life
  • Get Acquainted with PHA's New Website
  • Generation Hope Unites with Path to a Cure Climbers
  • Insurance Brainstorm for Conference
  • Extra Help for More Low-Income Medicare Recipients
  • PH in the News

January 15, 2010

  • PHA News Special - Tour the New Website

January 11, 2010

  • New Website is Live!
  • Ready, Set, Register!
  • Making Our Steps Toward a Cure Count Twice
  • Healthcare Reform Moving Forward
  • PH in the News

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.