May 18, 2011

PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President

PH Professional Network ... Another Step Forward

PH Resource Network was launched as PHA's first medical membership group at the 2000 PHA International Pulmonary Hypertension Conference. As we went through that first meeting in Chicago, we knew what our greatest hope was for the group. » Read more

What's In This Issue

» Spotlight On... PH Bill in the House
» Get Smart
» Living Better with PH
» PH Community Scoop

» Medical Community Bulletin
» Also of Interest
» PH News Headlines

Spotlight On...

PH Bill Introduced in House of Representatives

The Tom Lantos Pulmonary Hypertension Research and Education Act of 2011 (H.R. 1810) was introduced in the House of Representatives last week by Reps. Kevin Brady (R-TX) and Lois Capps (D-CA)! » Learn more

Get Smart

e-Learning Recording Available: Healthcare Changes in 2011

Got healthcare reform on your mind? Check out our webinar recording Healthcare Changes in 2011: How Healthcare Reform Will Affect the PH Community, presented by PHA’s Washington Representative, Gavin Lindberg. » Start watching now


PHA Classroom: Offerings Top 100!

PHA Classroom is bursting at the seams with more than 100 educational sessions for patients, caregivers and family members. With sessions ranging from the basics of PH to raising awareness and lifestyle issues, PHA Classroom has something for everyone. » Learn more and start your PH education today!


Patient Services at PHA on the Road

Planning to come to PHA on the Road? Don’t forget the patient services we are offering at the forums, including complimentary valet parking for patients and a Patient Rest Stop. If you haven’t registered yet, we encourage you to sign up now as space is limited! » Learn more


Parents Connect and Learn

Looking to catch up on the latest pediatric updates or connect with other parents of kids who have PH? Learn about the Parents Telephone Support Group | Register for the May 19 webinar PH Research: A Pediatric Perspective with Dr. Dunbar Ivy

Living Better with PH

Live Well, Get Moving!

Exercise can improve activity tolerance, muscle endurance, quality of life and self-esteem. Learn how to design an individualized exercise program with your healthcare team to get up and get moving this spring. » Learn more

PH Community Scoop

U.S. Air Force Honors PH Patient

On April 16, the 27th U.S. Expeditionary Bomb Squadron flew an American flag in combat over Afghanistan on board a B-1B Bomber in honor of PH patient Kari Lyn Trapp. Kari was picked for showing courage in fighting a battle at home, the battle against pulmonary hypertension. » Read more


Thank You, Special Event Planners!

From a wine tasting to a rocking chair challenge, these recent fundraisers combined creativity with a cause: The Grape Escape 2011 (Richwoods, Mo.); The Inaugural Dunwoody High 5K (Dunwoody, Ga.); Rock-a-thon for PH (Towson, Md.); Cure PH Golf Tournament (Clemmons, N.C.). » Learn more about special events

Medical Community Bulletin

Apply for K08/K23 Award

PHA and the National Heart, Lung, and Blood Institute (NHLBI) partner to provide supplemental funding to an individual who receives an NHLBI Mentored Clinical Scientist Development Award (K08) or a Mentored Patient-Oriented Research Career Development Award (K23) for PH research. Application deadline is June 1, 2011. Learn more | Find out about PHA's research program


Gilead Sciences Research Scholars Program in PH

This program provides financial support to three junior faculty researchers for a two-year period with the goal of enhancing understanding of PAH. Each award is funded up to $130,000. Application deadline is August 5, 2011. » Learn more

FUNdamentals of Writing a Research Abstract: Live Webinar!

Tuesday, May 24, 11:00 a.m. ET, Webinar
Lisa Wheeler, Research Coordinator for James Loyd, MD, at Vanderbilt University, will present this free live webinar on May 24 on PHA Online University. This webinar will steer allied health professionals through the process of writing a research abstract and the presentation of a poster. » Learn more


PHA Online University Course: Pulmonary Function Testing

Hosted by Marilyn Schmidt, RN, this course will provide nurses and other allied health professionals with an introduction to the basics of conducting and interpreting pulmonary function tests. FREE CME credits are available after completion of a post-test and evaluation. » Learn more


Dates Announced for 2011 PHA 30 City Medical Education Program

PHA is pleased to announce dates for the 2011 30 City Medical Education Program, which travels to U.S. cities without nationally recognized PAH centers and provides training for physicians and other healthcare professionals about the diagnosis and management of PAH. » Learn more
Also of Interest

Scleroderma Patients Gear Up for Summer Meeting in California

The Scleroderma Foundation will host its National Patient Education Conference in San Francisco, July 8-10, 2011. The event features a variety of workshops on a range of topics, including PH, a common complication in scleroderma patients. » Learn more

PH News Headlines

» To Your Good Health - Pulmonary Hypertension

» Mason Lewis, 4, is Youngest Briton to Receive Lung Transplant

» Discovery of Lung Stem Cells May Herald New Treatments

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Upcoming Events

May 19, 2011
PHA Parents Telephone Support Group Webinar
online and phone

June 2, 2011
Special Events e-Learning Event: Making the Most of Your Awareness Month Event
online and phone

June 4, 2011
The 2nd Annual Race 2 Cure PH
Anaheim Hills, Calif.

» Go to the Events Calendar

Video Spotlight

PH Professional Network

Watch this video to find out how PH Professional Network connects allied health professionals with other colleagues in the field.

 Generation Hope Blog

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Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.