Donor Stories

 Patient makes every dollar count by donating to PHA

Christina Back

Christina (Tina) Back considers herself lucky to have had a smooth treatment plan since her diagnosis with pulmonary hypertension (PH) in 2003. “I have had chronic rheumatoid arthritis since 1989,” Tina explains. “I see a doctor on a regular basis and am very conscious of my health. I think this allowed me to be more aware when something wasn’t quite right.” Six months after presenting symptoms such as shortness of breath, Tina was diagnosed with PH.

Describing herself as a “typical scientist” Tina began to search the web for answers to the many questions she had about PH. “There is so much alarming information out there,” Tina says. “It can be pretty scary to read about the severity of this disease.”

Early in her search for information her doctor pointed her to the Pulmonary Hypertension Association (PHA). “The website not only provided the important information that I was looking for but I was also able to hear the survival stories of others. It gave me reassurance that I was not alone,” Tina says.

Since these initial interactions with PHA, Tina has attended PHA’s International Conference and met the PHA community in person. “PHA is unlike any other organization that I have come in contact with,” Tina says. “It is amazing to see an entire community of patients, dedicated doctors and caregivers come together for this very important cause.”

As a tribute to PHA’s important work Tina supports PHA each year with an annual gift. “Pulmonary hypertension is a small community and PHA is a small organization,” Tina says. “But every dollar makes a difference in this fight. Through PHA you can see progress made in medical education, advocacy and support.”

“There is a return on each dollar donated, and that return is bigger than just one person, it is for all of us.”


 

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.