June 1, 2011

PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President

Dragonfly Heart Camp

It's been awhile since my last blog. There's so much to write about during recent travels to the American Thoracic Society and NHLBI's Patient Interest Organizations meeting ... but none of that is my subject today. Instead I want to tell you about Dragonfly Heart Camp. » Read more

What's In This Issue

» Spotlight On... Dr. Donohue and PH
» Get Smart
» Website Discoveries
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» PH News Headlines

Spotlight On...

Dr. Donohue and PH Ignite the Phone Lines

On Wednesday, May 11, something incredibly HUGE happened in the pulmonary hypertension community: a syndicated health columnist, Dr. Paul Donohue, responded to a PH question and, as a result, PHA's Patient-to-Patient Support Line rang off the hook! » Learn more

Get Smart

e-Learning Event: Making the Most of Your Awareness Month Event

Thursday, June 2, 3:00 p.m. ET, Webinar
Learn the ins and outs of utilizing social media, soliciting sponsorship, marketing and more from PHA Special Events staff and guest panelists. All event planners, from first-time through veteran, are encouraged to attend. » Register now


e-Learning Event: Lobby Locally - Fighting PH through District Visits

Wednesday, June 15, 7:00 p.m. ET, Webinar
Congress’s August Recess is just around the corner. That means it is time to plan a face-to-face visit with your members of Congress at their local offices. Join Gavin Lindberg and Carl Hicks as they talk about the power of district visits. » Register now


PHA on the Road: There's Still Time to Register!

Planning to come to PHA on the Road but haven’t registered yet? Registration is still available, but space is limited. Reserve your spot TODAY to ensure your attendance at this FREE education and networking opportunity. The first forum is this weekend! » Register now

Website Discoveries

Things I Found by Kathryn Frix: Web of Friends

Would you love to share your PH story and by doing so, raise PH awareness and encourage others to contribute to PHA? I know just the way you can do it all: Create a Web of Friends personal fundraising page to support PHA’s programs and services. » Read more

PH Community Scoop

Media Matters Webinar Inspires PH Community to Raise Awareness

In April, Alice Matiz attended PHA’s webinar training, Media Matters: Working with the Media to Raise Awareness. Less than a month later she scored a media success! And she's not the only one. » Read more

From the PHA News Desk

50 State Media Challenge: Get Coverage in 35 States by Sept. 1

Since the last 50 State Media Challenge update in April, PHers have received 14 news articles, bringing us to 36 articles in 23 states! We’re almost halfway to our goal of raising awareness in all 50 states and you can help us get the rest of the way there! » Join the challenge and read media success stories

Advocate for PH Research on Facebook

Facebook users spend an average of 14 minutes a day on the site. Spend a few of your Facebook minutes advocating for more PH research! PHA’s Facebook page now features a Take Action tab that allows you to send letters to your Members of Congress about the Tom Lantos PH Research and Education Act. » Take action now


Does Your Loved One Have PH?

Are you looking to share information and support with other caregivers? PHA is starting a Caregivers Telephone Support Group, and we need your input! This survey only takes three minutes. » Take the survey now


Leave a Legacy of Hope

When you include PHA in your will or other estate plans, you will help secure the future of PHA while enhancing lives and helping to defeat pulmonary hypertension. Learn more about how you can benefit from legacy planning and the many resources PHA has to help you get started. » Read how one legacy donor wanted "to do something more"

Medical Community Bulletin

Receive FREE Registration to Symposium

Less than half of the FREE registrations for the 2011 PH Professional Network Symposium currently remain and are going quickly! Only the first 300 PH-treating allied health professionals will register for free. » Register today while space is still available


Live Webinar: "PH in Scleroderma from a Nurse's Perspective"

Wednesday, June 8, 1:00 p.m. ET
Hosted by Barbara Smithson, RN, this webinar will teach nurses and other allied health professionals about the importance of pulmonary function testing in PH and scleroderma patients and the importance of carbon monoxide diffusing capacity. FREE Nursing CEU are available after completion of a post-test and evaluation. » Register now

PH News Headlines

» Standard Heart Drugs Won't Ease Pulmonary Hypertension

» Impact of Pulmonary Hypertension on Outcomes After Aortic Valve Replacement for Aortic Valve Stenosis

» Deborah Heart and Lung Launches Pulmonary Rehab Program

» Clinic Targets Pulmonary Hypertension

» First-Time PHun Walk Set for Sunday in Edison

» Nurse Fights Her Own Battle with Illness

» Taylor's Wish Hopes Fundraiser Grows

» Remembering Her Sister's Life, Local Artist Will Exhibit to Promote Awareness of Disorder

» Second Annual Dragonfly Heart Camp Sprint Triathlon

» More News

Connect with PHA

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Upcoming Events

June 4, 2011
The 2nd Annual Race 2 Cure PH
Anaheim Hills, Calif.

June 4, 2011
Seattle - PHA on the Road: PH Patients and Families Education Forum
Seattle, Wash.

June 4, 2011
Power for PH Inaugural Funwalk
Edison, N.J.

» Go to the Events Calendar

Generation Hope Blog

PHA Facebook Page

Need more information? Contact
Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.