Caregiver Shout-Out!Michael and Delia Rivera

This Shout-Out goes from pulmonary hypertension patient Delia Rivera to her husband and caregiver Michael Rivera.  

I would like to honor Michael Rivera. Not only is he my caregiver but my husband. I was diagnose d in 2000 and for 11 years he has been the one by my side through thick and thin. He has never missed an appointment. He always talks to doctors and nurses about any concerns or suggestions he might have. He's never complained about having to do everything there is to do. He always keeps positive thoughts in my mind and tells me I have a bright future…that there's nothing I can't do.

I believe in my heart that all caregivers should be honored because they’re the ones that really keep us going. The doctors treat us but our caregivers are by our sides day after day, so I take my hat off to all the caregivers out there.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.