Caregiver Shout-Out!Melanie and Jason Kozak

This Shout-Out goes from pulmonary hypertension patient Melanie Gertzer Kozak to her husband and caregiver Jason Kozak.

My husband, Jason Kozak, is my caregiver. I can't say enough about all of the wonderful things he does for me. He learned to mix Flolan and now Veletri and assists me whenever I need him! He is there for both emotional and physical support. I have multiple sclerosis, so between that and pulmonary hypertension I do have some days where I can't function at all. He is always there to support me...he takes over with the cooking, cleaning, laundry, etc. when I can't. His unconditional love and support makes me the luckiest girl ever.

I could never express how thankful I am to him. Words just aren't enough. We met when I had my Flolan pump and he wasn't even fazed by it! He is by far the best caregiver anyone could ask for because he does it out of love and never complains or holds it over my head. Thank you so much, Jason...you will never realize how much you mean to me and how much I love and appreciate you.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.