Resources for Family and Friends

Resources for Family and Friends Packet

Request a free information kit for caregivers

Resources for Family and Friends is a free information packet designed especially for family members and friends of PH patients. Learn about the services PHA offers to help you plan your next steps, find important resources and connect with other caregivers.

Order your free packet now!

Looking to distribute Resources for Family and Friends packets to caregivers of newly diagnosed patients?

If you’re a support group leader, event planner or medical professional, PHA can supply you with free referral postcards to distribute to newly diagnosed patients and their family members. These postcards provide information about PHA’s Patient-to-Patient Support Line (800-748-7274) for immediate support, and new patients or caregivers can return them to PHA to receive their own Resources for Family and Friends packets in the mail.

Request referral postcards!

For questions, email or call 301-565-3004 x800.

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.