Sept. 7, 2011



PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President

Image of lungs

People Make Change ...

We usually write about end points ... the things that happened. The reality is that the outcomes and results we celebrate are most often built upon long and hard work. Today, my blog is about a year's long process that, in truth, began quite a bit before the 2006 event with which I open and will no doubt continue long after this month's victory with which I close. » Read more

What's In This Issue

» Spotlight On... Awareness Month
» Get Smart
» Website Discoveries
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» PH News Headlines

Spotlight On...

An Awareness Month proclamation

Hear Ye! Hear Ye! Have Your Town Proclaim November PH Awareness Month

Receiving a PH Awareness Month proclamation from your local government is often as easy as sending an email or making one phone call. PHA even has a cartoon and video to get you started. » Learn more and make your request

Get Smart

PH patient and caregiver

Caregivers Telephone Support Group

Wednesday, Sept. 21, 1:30 p.m. ET
Are you a caregiver to a PH patient? Call in toll-free to connect, learn, and share strategies and experiences caring for an adult with PH. Calls are held on the third Wednesday of every month at 1:30 p.m. ET. » Learn more

    PHA Classroom logo

PHA Classroom Just Got Better

The Living with PH section of PHA Classroom is now divided into subsections, making it easier to navigate. The new subsections include: Staying Active with PH, Nutrition and PH, Medication & Healthcare Management, and Coping with PH & Maintaining Quality of Life. » Take a look at the changes

    People talking about PH

New in PHA Classroom: Help Others Understand PH 

Missed the “Telling Your Story: Explaining PH to Family, Friends and Coworkers” webinar? You’re in luck! A recording of the webinar is now available in the Living with PH section of PHA Classroom. The recording discusses strategies for explaining limitations and communicating about PH to those who don’t understand. » View recording

Website Discoveries

2011 Awareness Month logo

Things I Found by Kathryn Frix: Awareness Month

It seemed to happen so suddenly this year - signs of fall are everywhere! Just last week it was hot and humid. Now it's cool, leaves are fluttering  down all over the place and my winter squash is ready to harvest. I love fall! » Read more

PH Community Scoop

Balloon release at a Special Event

Summer Special Events Turn Up the Heat!

PHA extends a big thank you to those who made late summer “event-ful”: Ride PHor the Cure: Poker Run for PH (Hill City, Kans.) and PHA Fundraiser at Iron Pigs Stadium (Allentown, Penn.). Next stop: Awareness Month! Make November “event-ful” by organizing a special event. To get started, contact Jessica at

From the PHA News Desk
    beakers in a lab

One of the Best Investments You Can Make …

If you’re an investor today, you know that gold may be the place to be. But if PH is part of your life, you also know that investing in research is the way to find a cure. » Learn more about and support PHA’s research program today

women with video camera

Use the Power of YOUR Story to Raise PH Awareness This November!

Working with the media is an effective way to reach people in your community and educate them about PH. Join the PHAware Campaign and share your story this November! Get started by ordering materials to send to the media. Contact Elisabeth at 301-565-3004 x753 or

Medical Community Bulletin

Online University logo

New Quality Indicator Set for Systemic Sclerosis

Thursday, Sept. 29, 2:00 p.m. ET, Webinar
This webinar, hosted by Daniel Furst, MD, University of California, will discuss the new set of quality indicators just released for systemic sclerosis and how these new indicators will help improve care during a patient’s diagnosis, follow-up appointments and treatment. » Register now

BME speaker

Building Medical Education in PH Event in Missouri

Saturday, Oct. 15, St. Louis, Mo.
The Pulmonary Vascular Symposium, hosted by Washington University in St. Louis and Kansas University Medical Center, is designed to update clinicians and healthcare providers on the latest information about pulmonary hypertension and veno-thromboembolic disease. » Learn more

PHPN members

FREE Registration Still Available for Allied Health Professionals

They're going fast! Fewer than 65 FREE registrations remain for allied health professionals to attend the 2011 PH Professional Network Symposium Sept. 22-24 in Arlington, Va. Network with colleagues, learn about upcoming research in the field of PH and earn up to 11.25 hours of continuing education credit for FREE. » Learn more and register now

Dr. Ivy and patient

PHA Online University Course: Diagnosis of PH in Children

Hosted by Dunbar Ivy, MD, this course explores the clinical presentation and diagnostic evaluation of both neonates and children with PH. The course also discusses the different uses of diagnostic testing in children with PH from electrocardiography to ventilation-perfusion scintigraphy. FREE CME credits are available after completion of a post-test and evaluation. » Learn more

PH News Headlines

» Impact of Exercise on Those with Pulmonary Arterial Hypertension

» Article Helps Patient Seek Diagnosis

» "I’m Being Given a Second Chance at Life"

» Leukemia Drug Linked to PAH Warning Issued

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Upcoming Events

Sept. 10, 2011
5th Annual Walk and Roll
Akron, Ohio

Sept. 17, 2011
PHA Fundraiser at Especially for Pets
Canton, Mass.

Sept. 18, 2011
Colorado PH 5K Run for PHun
Aurora, Colo.

» Go to the Events Calendar

Generation Hope Blog

Make It Your Personal Legacy to Defeat PH

Need more information? Contact
Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.