Orlando, Fla., Support Group Connects with PHA’s Board of Trustees

See you in Orlando for PHA’s 2012 International Conference!Orlando Support Group leaders Melissa (right) and Dan QuevedoMore than 60 Orlando-area patients and caregivers took advantage of a special PHA support group meeting in March. PHA’s Board of Trustees meets periodically in strategic locations across the country. Whenever they meet, PHA tries to host a special support group meeting so Board members and staff can connect with the local community and vice versa. At this special meeting, Board member and former Board chair, Carl Hicks, discussed his adventures lobbying decision-makers for PH research, education and awareness. Patients shared their journeys with PH and their victories in the PH community, including fundraising successes and lobbying efforts.

To round out the meeing, Debbie Castro, PHA Director of Volunteer Services; and Doreen Lucadamo, PHA’s Director of Meetings and Conference Planning, spoke about PHA’s International PH Conference and Scientific Sessions which will take place in Orlando in 2012, and opportunities to get involved in volunteering in the months leading up to the event.

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.