Sept. 21, 2011 >> back to issue

50 State Media Challenge: PH News Column Leads to Diagnosis

Members of the pulmonary hypertension community have worked all year to get their PH journey in the news and their state marked with a star for PHA’s 50 State Media Challenge. PH community members have received a total of 73 articles in 31 states! One of the most recent successes highlights how the simple act of writing a letter can result in a life-saving media story.

In May, Dr. Paul Donohue published a letter from a reader asking about PH symptoms and resources in his nationally syndicated news column. This August, a separate reader wrote in and thanked Dr. Donohue for publishing the letter earlier this year and explained that after reading it, the writer decided to see a doctor, received a PH diagnosis and began treatment.

In the article the reader wrote, “I have been losing energy for years and thought it was due to aging. I became nauseated, dizzy, short of breath and tired. I had severe chest pains, and my blood pressure shot up. Emergency docs and a heart specialist looked at my heart for months after, but nothing showed up. By April, I was barely able to do basic things. Crossing two rooms left me winded. All the doctors I saw scratched their heads. Then I read your article on pulmonary hypertension. Everything fit my picture.”

Help raise PH awareness in your community — you never know whose life you could be saving.

For tips and resources to start you on the way toward a media success (and a star on your state), contact Elisabeth at 301-565-3004 x753 or PHAware@PHAssociation.org or read more online.

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.