Special Events Stories & Photos

Ride PHor the Cure Poker Run
Penokee, Kan., 2011

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PH patient Jean Schulz and her family hosted PHA's first-ever poker run in Penokee, Kan.! Approximately 75 devoted supporters braved the extreme heat (temps topped 100 degrees!) to raise awareness and funds to support PH patients throughout the country. Ride PHor a Cure poker run raised over $2,000. We're looking forward to more events like these in the future!


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.