October 5, 2011

PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President

Making a Difference...

In recent years, our friend Hall Skara has been building PHA Norway into an effective voice for pulmonary hypertension patients in his country. It's a great effort in a nation where there are not many diagnosed patients. » Read more

What's In This Issue

» Spotlight On... Six-Minute Marathon
» Get Smart
» Website Discoveries
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» PH News Headlines

Spotlight On...

The Six-Minute Marathon: A New Awareness-Raising Event

To a person living with PH, six minutes of exercise can feel like a marathon. That's why PHA is partnering with the Vera Moulton Wall Center at Stanford University to unveil our Six-Minute Marathon campaign at Stanford's 11th Annual Race Against PH on Nov. 6, 2011 . » Learn more

Get Smart

Creative Expression for Wellbeing

Wednesday, Oct. 12, 6:00 p.m. ET, Webinar
Medical research links creative endeavors to reduced symptoms and improved health. Join Janet Stone, active artist and PH patient, and Megan Mallory, PHA's Associate Director of Publications, as they discuss ideas, prompts and tips regarding creative expression for your health. This webinar includes time to share your own creative endeavors. » Register now 


Explaining PH to Your Child: Developmentally Appropriate Approaches

Thursday, Oct. 20, 8:30 p.m. ET, Webinar
Every child is unique. Join Michelle Calderbank and Jennifer Wisniewski, PH nurses from the Children's Hospital Colorado, as they discuss effective ways to explain PH to children of all ages and learning styles. » Register now

Website Discoveries

Things I Found: Videos for Patients

Have you ever looked for information on the PHA website, especially if you are new to PH, and wished you could get a little expert advice on what you were reading? Well, you can! » Read more

PH Community Scoop

Thank You, Colorado "PH-ers"!

Thirty walk teams. Four hundred registered. $29,092 PH research dollars raised. On Sept. 18, hundreds participated in the 2nd Annual Colorado PH Run for PHun in Aurora. The walk was preceded by a flurry of media activity in the Denver area. View Channel 7 News Spot | View Fox News 31 Spot


September: Filled with Events to Remember!

PHA extends a big thank you to all those who welcomed fall by walking, rolling, running and swinging for a cure: CAPHS 5th Annual Walk and Roll (Akron, Ohio); PHA fundraiser at Especially for Pets (Canton, Mass.); Colorado PH Run for PHun 2011 (Aurora, Col.); New England PH Forum and Swinging for a Cure Golf Tournament (Scarborough, Maine). Next stop? Awareness Month! » Learn more about planning a special event


Participate in PHA's Telephone Support Group

Thursday, Oct. 27, 8:00 p.m. ET
Are you a PH patient? Call in toll-free to connect, learn, and get inspiration from another person who knows what it's like living with PH. Calls are held on the fourth Wednesday of the month at 8:00 p.m. ET. » Register now 

From the PHA News Desk

Are you a CFC Donor? Designate your gift to PHA, #12097.

Federal employees, postal employees and members of the military can designate their 2012 CFC pledge to PHA, #12097. For more information, contact Jennifer at 301-565-3004 x756 or email

Calling All Quilters!

Two PHA support group leaders are coordinating the creation of quilts to be showcased at PHA's 2012 International PH Conference. Comprised of blocks crafted by PHA support groups, one quilt will pay tribute to the memory of those we have lost to this disease; the other will focus on support groups. Connect with your local support group | Learn more about the quilt project (Deadline: Oct. 31, 2011)

Medical Community Bulletin

Groundbreaking Attendance at PHPN Symposium

On Sept. 22-24, the PH Professional Network Symposium Inspiring Hope: New Directions in PAH brought 426 allied health professionals together in Crystal City, Va., to learn about and discuss critical advances in PH treatment and care. » Read more


Building Medical Education in PH Event in Missouri

Saturday, Oct. 15, St. Louis, Mo.
The Pulmonary Vascular Symposium, hosted by Washington University in St. Louis and Kansas University Medical Center, is designed to update clinicians and healthcare providers on the latest information about pulmonary hypertension and veno-thromboembolic disease. » Learn more

PH News Headlines

» Women with PAH Have Greater Response to Treatment than Men, Penn Study Finds

» Sex Hormone Cuts Hypertension Risk

» Sildenafil Appears Safe and Effective for Eisenmenger Syndrome

» "Time Matters" in the Fight Against Pulmonary Hypertension

» Two Doctors Put the Focus on Pulmonary Hypertension

» Caregivers' Stress Leads to Unhealthy Habits

» Port Talbot Family's Bid to Buy Mum Time

» More News

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Upcoming Events

Oct. 8, 2011
8th Annual Georgia Fun Walk for PH
Marietta, Ga.

Oct. 9, 2011
Cornhole Tournament: Remembering Ryan Memorial
Glenwood, Md.

Oct. 14, 2011
Reach for the Stars Gala
Rochester, Minn.

» Go to the Events Calendar

Video Spotlight

Laura Savage at PHPN Advocacy Day

Watch Laura Savage, RN, MSN, PCCN, from Virginia Commonwealth University Health System, talk about her experience lobbying during the PH Professional Network Advocacy Day on Sept. 24.

Generation Hope Blog

Host a Periwinkle Party

Web of Friends

Need more information? Contact
Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.