Empowered Patient Online Toolkit

Tab 3: Medical Records

In this tab, create a timeline of your medical history, from childhood through the present day. Be brief,
but specific. Include surgeries, medical conditions and hospitalizations.

You can also use this section of your binder to track your PH lab work and diagnostic tests. Ask your doctors for copies of any blood tests you have had performed. Most doctors will keep each other informed of any important lab work, but it is always good to have your own copy. You can also ask for copies of the results of all of the studies you have performed, such as CT scans, MRI scans, X-rays, echocardiograms, EKGs, ultrasounds, pulmonary function tests and sleep studies.

Hospital and Procedure Log

Track your hospitalizations, right heart catheterizations and other procedures using this log. Print out multiple sheets as necessary.

Family History Worksheet

Keeping a complete and accurate family medical history can be useful to you and your medical team. Use this worksheet to record important medical information about your biological relatives.

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Adobe Acrobat Reader is required to view and save Online Toolkit files. This is a free program available from the Adobe website. For step-by-step instructions on downloading files, visit our Toolkit Help page.

 

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.