Empowered Patient Online Toolkit

Tab 5: Education and Resources

Keep any educational materials you accumulate about PH or your associated diseases here. You can place all your information from PHA and any articles or important facts you obtain in this section. Here are a few resources to get you started.

Three Tips for the Empowered Patient

A PH and congenital heart disease patient offers advice on becoming your own health advocate.

Coordinating Care Among Doctors

A PH patient interviews an associated disease specialist to figure out which doctor is responsible for what.

How Social Workers Can Help You

Social workers can be your best ally in living (and thriving) with pulmonary hypertension.

Note Pages

Print out blank pages for the back of your binder to take notes during webinars and lectures, educational conferences and support group meetings.

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Understanding Medical Research New Links: MedlinePlus RSS Feed Medlineplus: A service of The National Library of Medicine
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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.