October 19, 2011

PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President

PHPN... a Building Block to a Better Future

The more that's going on ... the less time there is to write about it. Since the Friday before last, PHA has had meetings for our Scientific Leadership Council, Advances in Pulmonary Hypertension medical journal Editorial Committee, Research Committee, PH Professional Network (PHPN) Executive Committee, and PHA's Board of Trustees and its various committees. » Read more

What's In This Issue

» Spotlight On... PH Online Awareness Day
» Get Smart
» Living Better with PH
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» Also of Interest
» PH News Headlines

Spotlight On...

Participate in PH Online Awareness Day Nov. 1

Kick off PH Awareness Month from your computer! Spread the word to your friends and family on Facebook, Twitter, your blog or via email on Nov. 1 and throughout Awareness Month. Learn more about how you can participate. On Facebook? RSVP for the event and let us know what you're doing.

Get Smart

Explaining PH to Your Child: Developmentally Appropriate Approaches

Thursday, Oct. 20, 8:30 p.m. ET, Webinar
Every child is unique. Join Michelle Calderbank and Jennifer Wisniewski, PH nurses from the Children's Hospital Colorado, as they discuss effective ways to explain PH to children of all ages and learning styles. » Register now 


Symposium and Patient Day

Friday, Nov. 11, Durham, N.C.
At the 3rd Annual North Carolina Research Triangle Pulmonary Hypertension Symposium and PH Patient and Caregiver Day, patients will get state-of-the-art information on new treatments for PAH and can talk with medical experts about the challenges of living with PAH. » Learn more

Awareness Month 2011 Tips and Ideas Webinar Now Available 

Looking for last-minute ways to make a difference during Awareness Month? Then the new webinar, The Power of One: Getting Involved During Awareness Month 2011, is for you! PHA staff and veteran awareness raisers offer suggestions and inspiration. » Watch the webinar

Living Better with PH

Take Charge of Your Health

Overwhelmed by medical paperwork? A little organizing can go a long way. Download PHA's new Empowered Patient Online Toolkit to help you create your own personalized medical binder. The Toolkit's worksheets will help you track symptoms, procedures, medications and much more. » Get started

PH Community Scoop

Hear Ye, Hear Ye! PH Community Proclaims November PH Awareness Month

PH Awareness Month is still a few weeks away, but several members of the PH community have already received Awareness Month proclamations from their local elected officials. "Just imagine if we all did this. It is the small things that make the big things!" says Regina Maddox. » Read more


Participate in PHA's Patient Telephone Support Group

Sometimes it's hard to make it to a support group meeting. Let the meeting come to you via PHA's Patient Telephone Support Group. Join us on Thursday, Oct. 27, from 8–9 p.m. ET. Register now | Find out about all of our telephone support groups

Want to Help Another Patient? Good on the Phone?

Were you diagnosed with pulmonary hypertension before 2006? Are you currently unemployed? Do you like talking on the phone? Do you have a home (landline) telephone? If you answered YES to all of these questions, then you might be our next PHA Patient-to-Patient Support Line Volunteer! Fill out an interest form and we'll contact you whenever we have an opening. » Volunteer now

From the PHA News Desk

Congressional Luncheon Needs You!

PHA's free luncheon for PHers and Members of Congress takes place on Tuesday, Nov. 15, in Washington, D.C. The luncheon room holds 200 people, and we want to fill it! You can help by inviting your Members of Congress and their staff to attend, or by RSVPing yourself. » Help make this year's luncheon a success!


It's Magnet Mania at PHA!

This quarter's members-only PHA Store special is the PH Car Magnet now available for only $3. Price increases after Jan. 5, 2012. As a Member Appreciation thank you (October and November), you will receive a "PH Resources at Your Fingertips" magnet when you join or renew. Questions? Contact Jennifer at 301-565-3004 x756 or

Ask Your Transplant Questions and Share Your Story!

PHA's Transplant email group brings together patients considering transplantation, transplant
survivors and patients or family members curious about the transplantation process. To find out more about this group, contact Meghan Finney at or join the Transplant email group now.


Voice Your Opinion: Conference 2012

The exhibit hall at PHA's 10th International PH Conference and Scientific Sessions in Orlando, Fla., in June 2012 gives you the chance to meet representatives from many different companies or organizations connected to the pulmonary hypertension community. Who would you like to see represented at the Conference 2012 exhibit hall? » Let us know
Medical Community Bulletin

PH Summit in Cleveland

Nov. 6-8, Cleveland, Ohio
Hosted by the Cleveland Clinic, the 8th Annual Pulmonary Hypertension Summit will take place Sunday, Nov. 6 to Tuesday, Nov. 8. The summit will highlight disease mechanisms and pathophysiology of PH, plus evaluation and medical management of patients with PH. It also features a half-day of patient-oriented sessions. » Learn more


Building Medical Education in PH Mini Convention in Kansas

Tuesday, Nov. 15, Lansing, Kans.
The District One Mini Convention "Pulmonary Hypertension: How to Recognize It, How to Treat It" will feature speakers from Kansas University Medical Center, including a specialized nurse's perspective on PH, as well as interaction with medical equipment suppliers. » Learn more and register

PHA Online University: New Pediatric Courses Added!

 Eleven new pediatric courses filmed at the 4th International Childhood and Pulmonary Vascular Disease Conference are now available on PHA Online University. Each course offers FREE CME credits after completion of a post-test and evaluation. » Learn more
Also of Interest

Medicare Open Enrollment Starts Early This Year!

Medicare's Fall Open Enrollment began on Oct. 15 and lasts through Dec. 7. During this time, you have the right to change your Medicare health and drug coverage options without restriction or penalty. » Learn more

PH News Headlines

» Protein is Potential New Treatment for Adult Pulmonary Hypertension

» No Need to Perfuse Brain in Pulmonary Endarterectomy

» Pleioropic Effects of Statins in Distal Human Pulmonary Artery Smooth Muscle Cells

» FDA Warns of Pulmonary Arterial Hypertension Risk with Bristol-Myers' Sprycel

» Benefit Remembers San Luis Obispo Woman

» More News

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Upcoming Events

Oct. 28, 2011
4th Annual Cure for "Five Pennies" Gala
Schaumburg, Ill.

Oct. 29, 2011
Run for Lungs
Jackson, Miss.

Nov. 5, 2011
Inaugural Sarah Smiles Fun Walk for PH
Camillus, N.Y.

» Go to the Events Calendar

Video Spotlight

Email Groups PSA

Learn about the benefits of PHA's Email Groups for patients and caregivers. This video was produced by Colleen Brunetti and was sponsored by a 2011 Tom Lantos Innovation in Community Service Award.

Generation Hope Blog

Six-Minute Marathon

In Honor of Our Lives

Combined Federal Campaign (CFC)

Need more information? Contact
Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.