KendraMeet Kendra!

This interview was conducted in spring 2011 by Mira Kruger, the granddaughter of a pulmonary hypertension patient and a volunteer writer for PHA's Pathlight newsletter.

Where do you live?
I live in Port Angeles, Washington State.

How old are you?
I am 11 years old.

When were you first diagnosed?
I was diagnosed in the summer of 2006, right before I started second grade.

When did you first start having symptoms of pulmonary hypertension?
I had my tonsils taken out, and my oxygen levels kept dropping after that surgery.

What were your symptoms?
I don't really remember having symptoms, but my mom said I used to just stop sometimes while I was playing.

What activities do you like to do?
I love to read and color. I also like playing on the computer and riding my adult-sized tricycle.

Have you ever felt unable to do something because of PH?
I can't play sports, but that's okay because I don't really like sports anyhow. I can still play on the swing at the park, though, because I have a backpack for my oxygen.

How has your life changed since you've been diagnosed with PH?
I am homeschooled now because going to school full time was too tiring. I like being homeschooled because I can work on what I want when I want.

What is a message you'd like to pass on to other kids with PH?
Don't worry if you have to get a central line. It might bother you a little bit at first, but it doesn't hurt. Sometimes I even forget it's there.

 

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

For the best viewing experience of this site, it is recommended that you use Internet Explorer 8 or 9 or Firefox.

© 2014 Pulmonary Hypertension Association. All Rights Reserved.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
Webmaster@PHAssociation.org
    Privacy Policy   Virtual Tour of Website    Provide Feedback & Report Bugs

Designed by Matrix Group International, Inc.®

NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.