KendraMeet Kendra!

This interview was conducted in spring 2011 by Mira Kruger, the granddaughter of a pulmonary hypertension patient and a volunteer writer for PHA's Pathlight newsletter.

Where do you live?
I live in Port Angeles, Washington State.

How old are you?
I am 11 years old.

When were you first diagnosed?
I was diagnosed in the summer of 2006, right before I started second grade.

When did you first start having symptoms of pulmonary hypertension?
I had my tonsils taken out, and my oxygen levels kept dropping after that surgery.

What were your symptoms?
I don't really remember having symptoms, but my mom said I used to just stop sometimes while I was playing.

What activities do you like to do?
I love to read and color. I also like playing on the computer and riding my adult-sized tricycle.

Have you ever felt unable to do something because of PH?
I can't play sports, but that's okay because I don't really like sports anyhow. I can still play on the swing at the park, though, because I have a backpack for my oxygen.

How has your life changed since you've been diagnosed with PH?
I am homeschooled now because going to school full time was too tiring. I like being homeschooled because I can work on what I want when I want.

What is a message you'd like to pass on to other kids with PH?
Don't worry if you have to get a central line. It might bother you a little bit at first, but it doesn't hurt. Sometimes I even forget it's there.


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.