Our Journeys

PHAmerica Honors Essays

Jhenna Pacelli

PHAmerica Rookies Ambassador

Representing newly diagnosed pulmonary hypertension patients (less than 18 months).

"I will go to any lengths to help spread awareness for this disease and nothing will stop me. I also know how important it is to truly get the word out because I experienced being misdiagnosed many times and experienced how frustrating and painful it was."

- Jhenna Pacelli

I would help other pulmonary hypertension (PH) patients in the community stay positive by ALWAYS being there for them and always being a positive reinforcement. Having PH has changed me in a lot of ways, but it has also made me extremely strong and made me a fighter. I will go to any lengths to help spread awareness for this disease and nothing will stop me. I also know how important it is to truly get the word out because I experienced being misdiagnosed many times and experienced how frustrating and painful it was.

Jhenna PacelliA lot of my PHriends say, "I have PH and that PH doesn't have me" and I truly believe and I live it every day. I will not let PH get me down and I would love to continue to share my story on how I was given six months to live because I was in such bad shape and I now only have borderline PH. It did take a lot of fighting, but it was worth it! I would love to give other patients hope and inspiration. I know it can be frustrating with this disease but there is so much more to everyone!

 

 

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.