Visit with Health LA Pays Off

I never thought I could make a difference!
~ Joy Gore, PH patient

Dvora Lovinger and Joy GoreWhen Joy Gore (pictured right with Dvora) attended PHA's Congressional Luncheon in November 2010, she talked with Dvora Lovinger, Rep. John Sarbanes' health legislative assistant, about what it's like to live with PH. In June, Joy followed up with Dvora and requested that Congressman Sarbanes (D-MD) become a co-sponsor of the Tom Lantos PH Research and Education Act of 2011. Within a few days, he did! 

 

 

 

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.