November 2, 2011

PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President

Welcome to Awareness Month!

Awareness Month is here! To kick it off, here's a post from Katie Kroner, PHA's Director of Advocacy and Awareness. As you'll see, there are Awareness Month activities going on around the world. I hope you'll add your voice to the conversation! » Read more

What's In This Issue

» Spotlight On... Congressional Luncheon
» Get Smart
» Website Discoveries
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» Also of Interest
» PH News Headlines

Spotlight On...

Congressional Luncheon Needs You!

Tuesday, Nov. 15, 2011
PHA's free luncheon for PHers and their Members of Congress takes place on Tuesday, Nov. 15, in Washington, D.C. The luncheon room holds 200 people, and we want to fill it! You can help by inviting your Members of Congress and their staff to attend, or by RSVPing yourself . » Help make this year's luncheon a success!

Get Smart

Webinar on Early Diagnosis

Thursday, Nov. 10, 3 p.m. ET/12 p.m. PT
Join five of the nation's leading PAH physicians as they present groundbreaking data from the REVEAL Registry. This research suggests that despite a range of available therapies, patients still experience significant delays in diagnosis. Panelists will discuss the need for early diagnosis of PAH and the latest research recommendations to improve patient outcomes. » Register now 


Symposium and Patient Day

Friday, Nov. 11, Durham, N.C.
At the 3rd Annual North Carolina Research Triangle Pulmonary Hypertension Symposium and PH Patient and Caregiver Day, patients will get state-of-the-art information on new treatments for PAH and can talk with medical experts about the challenges of living with PAH. » Learn more


Creative Expression for Wellbeing Webinar Recording Available

Medical research links creative endeavors to reduced symptoms and improved health. This recorded webinar features Janet Stone, active artist and PH patient, and Megan Mallory, PHA's Associate Director of Publications, discussing ideas, prompts and tips regarding creative expression for your health. » View recording

Website Discoveries

Things I Found by Kathryn Frix: Caregiver Shout-Outs

Caregivers. You don't have to say much more, that word brings up feelings of warmth and gratitude for those in our lives who take care of us when we need it most. But you have much more to say and I found a great place to say it - Caregiver Shout-Outs! » Read more

PH Community Scoop

Caregivers Telephone Support Group

Wed., Nov. 16, 1:30 p.m. ET/10:30 a.m. PT
Are you a caregiver to a PH patient? Call in toll-free to connect, learn and share strategies and experiences caring for an adult with PH. Calls are held on the third Wednesday of every month at 1:30 p.m. ET/10:30 a.m. PT. » Learn more


Parents Telephone Support Group: Holiday Season

Thurs., Nov. 17, 8:30 p.m. ET/5:30 p.m. PT
Have your holiday traditions changed since your child was diagnosed? Call in to share stories and tips for the holiday season with other parents of kids who have PH. » Learn more
From the PHA News Desk

PHA Wants to Fund Your Great Idea

 Through the Tom Lantos Innovation in Community Service Awards program, you could receive up to $5,000 to fund your great idea. PHA is looking to fund projects that increase awareness of PH, develop services for the PH community or expand the reach of an existing PH program. » Learn more and apply

Medical Community Bulletin

doctor holding stethoscope

PH Summit in Cleveland

Nov. 6-8, Cleveland, Ohio
Hosted by the Cleveland Clinic, the 8th Annual Pulmonary Hypertension Summit will take place Sunday, Nov. 6, to Tuesday, Nov. 8. The summit will highlight disease mechanisms and pathophysiology of PH, plus evaluation and medical management of patients with PH. It also features a half-day of patient-oriented sessions. » Learn more


Demystifying Pulmonary Arterial Hypertension

Saturday, Nov. 19, Oak Lawn, Ill.
The Advocate Christ Medical Center in Oak Lawn, Ill., will host an all-day education session to educate medical professionals and debunk myths about PAH. For more information on the program, email Heba Ghouleh at or view the event schedule (PDF).
Also of Interest

Celebrate World COPD Day

Wednesday, Nov. 16, White Plains, N.Y.
Join Burke Rehabilitation Hospital to celebrate World COPD Day with education, networking and resources for patients with chronic obstructive pulmonary disease and their caregivers. The event includes free spirometry testing, flu shots, blood pressure tests, chair massages and more. For more info, please call 914-597-2838 or view the invitation (PDF).

PH News Headlines

» CHEST: Study Looks at Sildenafil Dose for Youth with PAH

» CHEST: Severe PAH May Be Undertreated - Must register (free) to access 

» VIP and Endothelin Receptor Antagonist: An Effective Combination Against Experimental PAH

» Lakes Region: Bridgton Girl Fights Ailments with a Smile

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Upcoming Events

Nov. 5, 2011
Inaugural Sarah Smiles Fun Walk for PH
Camillus, N.Y.

Nov. 5, 2011
2011 Pulmonary Pints Pubcrawl
Baltimore, Md.

Nov. 6, 2011
11th Annual Race Against PH
Stanford, Calif.

» Go to the Events Calendar

Video Spotlight

Pat Turnbough advocates for pulmonary hypertension at the Pulmonary Hypertension Professional Network Advocacy Day on Capitol Hill, Washington, D.C.

Which U.S. Senator did Pat Turnbough run into while advocating for PH in Washington, D.C.? Watch this video to find out and then get more information on how YOU can bring PH awareness to Washington!

Generation Hope Blog

Combined Federal Campaign (CFC)

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Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.