Research Room

PHA's International PH Conference provides researchers access to the largest gathering of PH patients in the world.

Patient in research roomEach biennial meeting of PHA's International PH Conference and Scientific Sessions includes a Research Room dedicated to helping researchers further their studies by allowing for the collection of data, including biological specimens (cheek swabs and blood samples) from PH patients. This event gives researchers the rare opportunity to collect data from the largest gathering of pulmonary hypertension patients in the world at any given time.

The first Research Room was held in 1994 at PHA's Conference in Stone Mountain, Ga. That first gathering brought together almost 70 patients. At PHA's 2012 Conference in Orlando, Fla., PHA hosted nine research teams from all over the U.S., with more than 230 attendees participating in the Research Room. Research projects approved in 2012 included:

  • A research study to identify which psychologic variables (depression, anxiety, stress) and physiologic variable (six-minute walk test) best predicts health-related quality of life in the adult pulmonary hypertension population;
  • Autoantibodies in PAH
  • Capture chip follow up study in PAH patients;
  • Genetic characterization of circulating CD33 & CD34 progenitor cells in PAH;
  • Genetics and genomics of PAH;
  • Prevalence of restless leg syndrome in patients with PH;
  • The role of angiogenic signaling molecules in PAH; and
  • Understanding the significance of blood-based markers for PH.

PHA's 2014 Conference taking place June 20-22, in Indianapolis, Ind., will follow in this tradition. 

The investigator application period for the 2014 PHA Research Room is now closed.

Questions? Contact or 301-565-3004 x770.


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Apply Today

Apply today to participate as an Investigative Group at the 2014 Research Room. Applications, with a copy of the study's IRB-approval, are due on Monday, March 10, 2014.

Download the 2014 Research Room Investigator Application (Word)

2012 Highlights

Check out video highlights from our 2012 Conference and get an up-close view on the education, networking and fun that took place.

View 2012 Conference Highlights

PHA thanks the sponsors of the International PH Conference and Scientific Sessions!

Diamond Sponsors: Actelion Bayer Gilead

Platinum Sponsor: United Therapeutics

Silver Sponsor: Lung Biotechnology

Bronze Sponsor: Accredo

General Sponsor: CVS Caremark Specialty Pharmacy

To support the International PH Conference and Scientific Sessions, please visit the sponsorship page.




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