November 16, 2011

       
PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President


PH event in Germany October 2011

An Awareness Month Journey

I began the month a bit early with a three-day trip to Frankfurt, Germany, where I was honored to address the German PH Association - PHeV - on the occasion of its fifteenth anniversary. Its founder, Bruno Kopp, is a PH patient in a family with 15 PH patients. » Read more

What's In This Issue


» Spotlight On... Lantos Awards
» Get Smart
» Living Better with PH
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» Also of Interest
» PH News Headlines

Spotlight On...


PHA Wants to Fund Your Great Idea

Through the Tom Lantos Innovation in Community Service Awards program, you could receive up to $5,000 to fund your great idea. PHA is looking to fund projects that increase awareness of PH, develop services for the PH community, or expand the reach of an existing PH program. » Learn more and apply

Get Smart


Recorded Webinar on Early Diagnosis Now Available

Five of the nation's leading PAH physicians present groundbreaking data from the REVEAL Registry in this recorded webinar. Panelists discuss the need for early diagnosis of PAH and the latest research recommendations to improve patient outcomes. » Watch now 

Living Better with PH


Carol from Texas

Holiday Travel with PH

Planning ahead for travel ensures that your trip will be safe and enjoyable. Review your travel plans with your doctor. Be sure to discuss the need for supplemental oxygen, the amount of medications and medical supplies you should pack, and the altitude during travel and at your travel destination. » Read more about traveling with PH

PH Community Scoop
 

What's New? PH Awareness Month Successes!

We're halfway through Pulmonary Hypertension Awareness Month and the PH community has already worked together in incredible ways to raise awareness in cities and states across this country. Keep up-to-date on the PH community's Awareness Month activities and successes by regularly checking out PHA's What's New feed. » Learn more


Parents Telephone Support Group: Holiday Season

Thursday, Nov. 17, 8:30 p.m. ET/5:30 p.m. PT
Have your holiday traditions changed since your child was diagnosed? Call in to share stories and tips for the holiday season with other parents of kids who have PH. » Learn more

   

Can't Make It to a Support Group Meeting in Your Town?

Tuesday, Nov. 22, 8 p.m. ET/ 5 p.m. PT
PHA hosts a monthly Patient Telephone Support Group meeting for any patient who has questions, needs support or just wants to hear the stories of other patients. At least a dozen patients call in and share their concerns, hopes and questions. » Learn more and register
From the PHA News Desk
    Pulmonary Hypertension  Association launches a new website for Conference.

2012 Conference Website Launched!

Check out the newly launched 10th International PH Conference website, which will be the home-base for all Conference information over the next few months. Available information includes a schedule of events, hotel and travel information and more. Start planning your trip now! » Learn more



Patient Scholarship Program for Conference Accepting Applications

PHA is pleased to announce that the Patient Scholarship Program is officially open. Scholarships are designed to help patients, who could not attend the 10th International PH Conference without financial support, have the opportunity to benefit from all that Conference has to offer. » Learn more

   

Ask Your Transplant Questions and Share Your Story!

PHA's Transplant email group brings together patients considering transplantation, transplant
survivors and patients or family members curious about the transplantation process. To find out more about this group, contact Meghan Finney at Transplant@PHAssociation.org or join the Transplant email group now.

Medical Community Bulletin


Demystifying Pulmonary Arterial Hypertension

Saturday, Nov. 19, Oak Lawn, Ill.
The Advocate Christ Medical Center in Oak Lawn, Ill., will host an all-day education session to educate medical professionals and debunk myths about PAH. For more information on the program, email Heba Ghouleh at hebaghouleh@yahoo.com or view the event schedule (PDF).

Also of Interest


Participate in the EveryLife Art Contest

Calling all artists, kids, parents, friends and family! Share your art that captures the beauty, power, love, pain and courage of the rare disease community. Two grand prizes will be awarded in each of three age groups. Entries must be received by Tuesday, Jan. 31, 2012. » Learn more
PH News Headlines


» Sildenafil Found Beneficial in Pediatric PAH

» Empowered by Hope: Political and Health Advocate Remains Active Despite PH

» Racing to Raise Awareness of PH

» Wear Purple Friday Night to Support Football Team "Mascot"

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Upcoming Events

Nov. 18, 2011
Zumbathon for PH
Canton, Conn.

Dec. 10, 2011
7th Annual Fun Walk for PH
Uniondale, N.Y.


» Go to the Events Calendar

Video Spotlight

The 2011 PHA Dinner and Wine Tasting Fundraiser took place on Nov. 12 in St. Louis, Mo.

The 2011 PHA Dinner and Wine Tasting Fundraiser took place on Nov. 12 in St. Louis, Mo. The event included a home-cooked buffet, wine tasting, silent auction and live music. PHA's chair of the Board of Trustees, Laura D'Anna, spoke at the event. » Watch the video

Generation Hope Blog

Combined Federal Campaign

Legacy of Hope Society



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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.