Teens raise awareness

Savanha is the older sister of a PH patient

soccer team puckered up 4 PH

"I have always wanted to be a cardiologist... I hope some day to find a cure for PH and never see any one go through what my family and PH friends do." - Savanha

This year my soccer team puckered up 4 PH. It was great to know that our teamwork was not only on the field. Some teammates and I also attend a club called c3. At the club, we talked about puckering up for PH and got 30 more puckers.

Last year for my birthday, I asked for donations for PHA and we raised more than $300. All of this also got in the newspaper and spread more awareness.

This year for my birthday, my friends and I are planning to raise awareness for PH and ask for donations again. My friends Lexi and Kristen have joined with me on this. Kristen is in Girl Scouts and she went to her troop and got them to pucker up for PH. She also had some of her brother's friends pucker up too. Lexie did a school report; she called and asked me all about PH and what it is like to have a sister with PH.

From Spring 2011 Pathlight.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.