Teens raise awareness

Cristiana’s family has lost three members to PH, including her father and grandfather

Group of high school friends

I am in my high school Med-Sci group [Medical Science] (pictured right) and I actually love it! I had the idea to sell the periwinkle PHA “Empowered by Hope” bracelets [to raise money for PHA]. I presented it to the head of Med-Sci and another teacher and they both loved it!

We made $150 by the second day and continued selling them until March. We allowed the students in Med-Sci to sell five bracelets at a time and for each set of five bracelets sold, they earn one hour of community service. I am the project manager, and we are selling the bracelets for $2 and handing out the small green PHA informational cards with each bracelet.

From Spring 2011 Pathlight.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.